{"id":42342,"date":"2026-03-26T10:09:33","date_gmt":"2026-03-26T17:09:33","guid":{"rendered":"https:\/\/unlocked.microsoft.com\/?post_type=stories&#038;p=42342"},"modified":"2026-07-10T10:02:57","modified_gmt":"2026-07-10T17:02:57","slug":"gdy-dane-plyna-szybciej-pojawia-sie-nowa-nadzieja","status":"publish","type":"stories","link":"https:\/\/unlocked.microsoft.com\/pl\/gdy-dane-plyna-szybciej-pojawia-sie-nowa-nadzieja\/","title":{"rendered":"Gdy dane p\u0142yn\u0105 szybciej, pojawia si\u0119 nowa nadzieja"},"content":{"rendered":"\n<div\n    id=\"block_8ff0abffe931a9d9a4263fddab71c668\"\n    class=\"split-feature split-feature--inset-image split-feature--right split-feature--bottom js-split-feature js-parallax \">\n    <div class=\"split-feature__content js-split-feature-content\">\n        <div class=\"transition--in-up\">\n            <div class=\"split-feature__header-wrapper\">\n                                <h1 class=\"split-feature__header split-feature__header__size-h2\">\n                                    Gdy dane p\u0142yn\u0105 szybciej, pojawia si\u0119 nowa nadzieja                                <\/h1>\n                                <\/div>\n                <div class=\"split-feature__excerpt-wrapper\">\n            <div class=\"split-feature__excerpt\">Osoby cierpi\u0105ce na ALS decyduj\u0105 si\u0119 udost\u0119pnia\u0107 swoje dane za po\u015brednictwem serwisu Neuromine, co pozwala naukowcom wsp\u00f3lnie przyspieszy\u0107 prace<\/div>                                <\/div>\n    <\/div>\n<\/div>\n<div class=\"split-feature__media transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01.jpg 1356w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-80x80.jpg 80w, 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xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M7.35547 9.06274H3.41797V22.0002H7.35547V9.06274Z\" fill=\"currentColor\"\/><path d=\"M16.9197 9.06274C14.668 9.06274 14.0436 9.80074 13.543 10.7502V9.06274H9.60547V22.0002H13.543V14.6877C13.543 13.5627 13.543 12.4377 15.5117 12.4377C17.4805 12.4377 17.4805 13.5627 17.4805 14.6877V22.0002H21.418V14.6877C21.418 11.3127 20.8555 9.06274 16.9197 9.06274Z\" fill=\"currentColor\"\/><path d=\"M5.38672 7.9375C6.47403 7.9375 7.35547 7.05606 7.35547 5.96875C7.35547 4.88144 6.47403 4 5.38672 4C4.29941 4 3.41797 4.88144 3.41797 5.96875C3.41797 7.05606 4.29941 7.9375 5.38672 7.9375Z\" fill=\"currentColor\"\/><title id=\"icon-6a6905ea421ae\">LinkedIn<\/title><\/svg>    <\/a>\n\n        \n    <\/div>\n\n    \n    <div\n        class=\"sr-text js-social-status\"\n        role=\"status\"\n    ><\/div>\n<\/section>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905ea422ca\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_5245f244414d0371e1a951345bf48261\"\n    class=\"publication-date \">\n    <p class=\"publication-date__text\">26 marca, 2026<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905ea42c57\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905ea42e60\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Szacuje si\u0119, \u017ce na ca\u0142ym \u015bwiecie na ALS cierpi oko\u0142o 450 000 os\u00f3b.<\/h4>\n<p class=\"--h5\">Nie ma na to lekarstwa.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905ea46418\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a6905ea4390f\"\n    class=\"rich-text transition--in-up \">\n    <p>Dla os\u00f3b cierpi\u0105cych na ALS liczy si\u0119 ka\u017cda sekunda. Po postawieniu diagnozy wielu z nich pozostaje zaledwie 2\u20135 lat, kt\u00f3re mog\u0105 sp\u0119dzi\u0107 z przyjaci\u00f3\u0142mi i bliskimi. Rodziny musz\u0105 nauczy\u0107 si\u0119 nowego s\u0142ownictwa \u2013 zg\u0142\u0119bniki do \u017cywienia, urz\u0105dzenia wspomagaj\u0105ce poruszanie si\u0119, utrata g\u0142osu \u2013 podczas gdy w laboratoriach badawczych zaczyna tyka\u0107 inny, cichszy zegar. D\u0142ugotrwa\u0142e badania naukowe rzadko id\u0105 w parze z pilnymi potrzebami klinicznymi \u2013 i w\u0142a\u015bnie t\u0119 rozbie\u017cno\u015b\u0107 postanowi\u0142a zmieni\u0107 organizacja <a href=\"https:\/\/www.answerals.org\/\" target=\"_blank\" rel=\"noopener\">Answer ALS<\/a>.<\/p>\n<p>Organizacja Answer ALS powsta\u0142a w oparciu o prost\u0105, ale niezwykle wa\u017cn\u0105 ide\u0119, \u017ce osoby cierpi\u0105ce na ALS to co\u015b wi\u0119cej ni\u017c tylko pacjenci w systemie opieki zdrowotnej. Mog\u0105 one aktywnie przyczynia\u0107 si\u0119 do post\u0119pu. Gdy ludzie decyduj\u0105 si\u0119 udost\u0119pnia\u0107 swoje dane \u2013 w bezpieczny i odpowiedzialny spos\u00f3b, dla dobra og\u00f3\u0142u \u2013 mo\u017ce to otworzy\u0107 zupe\u0142nie nowe perspektywy dla bada\u0144 naukowych<\/p>\n<p>Organizacja Answer ALS zrzesza naukowc\u00f3w, osoby cierpi\u0105ce na ALS oraz dzia\u0142aczy spo\u0142ecznych w ramach otwartej, opartej na wsp\u00f3\u0142pracy inicjatywy maj\u0105cej na celu przyspieszenie prac nad odkryciem metod leczenia i lekarstw. Celem jest zapewnienie bezpiecznego dost\u0119pu do szczeg\u00f3\u0142owych danych klinicznych i biologicznych, a tak\u017ce powi\u0105zanych pr\u00f3bek biologicznych, tak aby naukowcy mogli zidentyfikowa\u0107 podgrupy biologiczne, biomarkery i cele terapeutyczne. Jednak w przesz\u0142o\u015bci samo posiadanie danych nie oznacza\u0142o jeszcze ich udost\u0119pniania w spos\u00f3b, kt\u00f3ry faktycznie pomaga\u0142 naukowcom w szybszym osi\u0105ganiu post\u0119p\u00f3w.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905ea47221\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_e26a208b8359c2ca97cc299eb475e563\" class=\"video-player\">\n    <div id=\"videoplayer-1\" class=\"video-player__wrapper js-video-player theme-overlay  has-overlay-image\" aria-label=\"Obejrzyj \u201eLiczy si\u0119 ka\u017cda sekunda\u201d\">\n        <div\n            id=\"video-player-overlay-527fadc4-6b47-4f59-8bf3-15bc57be9233\"\n            class=\"video-player__overlay js-video-player-overlay\"\n            data-label-video-title=\"\u201eLiczy si\u0119 ka\u017cda sekunda\u201d\"\n            data-label-desktop=\"A man using assistive breathing equipment holds a young girl in a white shirt as they both look 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row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eaaf0f7\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a6905eaaefea\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eaaf50c\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a6905eaaf2a9\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Wyzwanie, kt\u00f3re zmieni\u0142o tempo dzia\u0142a\u0144<\/h3>\n<p>Organizacja Answer ALS dysponowa\u0142a niezwykle cennymi danymi: ogromnym, wieloomicznym zbiorem informacji o ALS obejmuj\u0105cym uczestnik\u00f3w programu, w tym dane z pe\u0142nego sekwencjonowania genomu, bogate dane kliniczne gromadzone w czasie oraz modele neuron\u00f3w oparte na kom\u00f3rkach macierzystych pochodz\u0105cych od pacjent\u00f3w. Jednak pierwsza pr\u00f3ba ich udost\u0119pnienia \u2013 za po\u015brednictwem instytucji akademickiej \u2013 nigdy nie by\u0142a projektowana z my\u015bl\u0105 o dzia\u0142aniu na du\u017c\u0105 skal\u0119.<\/p>\n<p>W praktyce platforma ta funkcjonowa\u0142a raczej jak zwyk\u0142e repozytorium plik\u00f3w lub miejsce, w kt\u00f3rym gromadzono wszelkie dane \u2013 jednak nie by\u0142o to rozwi\u0105zanie przyjazne dla u\u017cytkownika. Naukowcy mogli teoretycznie wybiera\u0107 konkretne kohorty, wymaga\u0142o to jednak znajomo\u015bci komend wiersza polece\u0144 oraz zaawansowanej wiedzy informatycznej. Dla wielu naukowc\u00f3w zajmuj\u0105cych si\u0119 badaniami podstawowymi i klinicyst\u00f3w nawet proste pytania, takie jak \u201eCzy mog\u0119 wyodr\u0119bni\u0107 dane dotycz\u0105ce kobiet z ALS?\u201d, by\u0142y trudne do rozstrzygni\u0119cia bez znacznego wsparcia technicznego. Ogranicza\u0142o to zdolno\u015b\u0107 platformy do umo\u017cliwiania wydajnego, samodzielnego wyszukiwania informacji.<\/p>\n<p>Co gorsza, spos\u00f3b dzia\u0142ania projektu niepostrze\u017cenie ograniczy\u0142 kr\u0105g potencjalnych uczestnik\u00f3w. Je\u015bli kto\u015b nie czu\u0142 si\u0119 pewnie w obs\u0142udze wiersza polece\u0144 lub nie posiada\u0142 zaawansowanych umiej\u0119tno\u015bci w zakresie oblicze\u0144 i przechowywania danych, ten \u201eotwarty\u201d zbi\u00f3r danych w rzeczywisto\u015bci wcale nie by\u0142 otwarty. A poniewa\u017c platforma nie zosta\u0142a stworzona jako bezpieczny, publicznie dost\u0119pny zas\u00f3b \u2013 co stanowi sedno misji Answer ALS \u2013 trudno by\u0142o w odpowiedzialny spos\u00f3b zapewni\u0107 globaln\u0105 wymian\u0119 danych na du\u017c\u0105 skal\u0119.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eaaf8af\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6905eabe671\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eabde06\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_7a7e1edd158f6fa22aac19a39c5c8d06\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-video js-media-video\">\n            <div\n            class=\"media-video__wrapper\"\n                        role=\"presentation\"\n                    >\n\n                    <video\n                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\n\n<div\n    id=\"block_6a6905eabe03f\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Szybsze dzia\u0142anie, wi\u0119ksze finansowanie, bezkompromisowa wsp\u00f3\u0142praca<\/h4>\n<p>Dla Steve\u2019a Gleasona to nie tylko wskaz\u00f3wka.<\/p>\n<p>By\u0142y obro\u0144ca dru\u017cyny New Orleans Saints pom\u00f3g\u0142 pokaza\u0107, na co sta\u0107 osoby cierpi\u0105ce na ALS. Po zdiagnozowaniu choroby w 2011 roku Steve przeku\u0142 swoje do\u015bwiadczenia w punkt wyj\u015bcia do dzia\u0142ania, zabiegaj\u0105c o lepsze wsparcie, nowocze\u015bniejsze rozwi\u0105zania technologiczne i szybszy post\u0119p w badaniach.<\/p>\n<blockquote>\n<h6 class=\"--h6\">\u201eM\u00f3wi\u0119, \u017ce zdiagnozowano u mnie ALS, aby w przysz\u0142o\u015bci miliony ludzi unikn\u0119\u0142y tej diagnozy\u201d \u2013 m\u00f3wi Steve Gleason, za\u0142o\u017cyciel i cz\u0142onek zarz\u0105du organizacji Answer ALS.<\/h6>\n<\/blockquote>\n<p>Wielu fan\u00f3w NFL pami\u0119ta go z jednego legendarnego momentu \u2013 zablokowania wykopu w meczu z 2006 roku. W 2012 roku przed Superdome ods\u0142oni\u0119to jego br\u0105zowy pomnik, przedstawiaj\u0105cy go w trakcie tego kultowego zagrania. Obecnie pomaga on pokonywa\u0107 przeszkody, kt\u00f3re utrudniaj\u0105 innym osobom cierpi\u0105cym na ALS dost\u0119p do pomocy i post\u0119py w leczeniu.<\/p>\n<p>Steve, jako wieloletni dzia\u0142acz na rzecz os\u00f3b cierpi\u0105cych na ALS, zawsze podkre\u015bla\u0142, \u017ce osoby z t\u0105 chorob\u0105 nie powinny czeka\u0107 na lekarstwo, by m\u00f3c nadal prowadzi\u0107 warto\u015bciowe \u017cycie. Poprzez inn\u0105 organizacj\u0119 non-profit, o nazwie <a href=\"https:\/\/teamgleason.org\/\" target=\"_blank\" rel=\"noopener\">Team Gleason<\/a>, pom\u00f3g\u0142 tysi\u0105com os\u00f3b cierpi\u0105cych na ALS i inne schorzenia nerwowo-mi\u0119\u015bniowe uzyska\u0107 dost\u0119p do praktycznych narz\u0119dzi i us\u0142ug, kt\u00f3re ju\u017c teraz pozwalaj\u0105 im zachowa\u0107 niezale\u017cno\u015b\u0107 \u2013 zw\u0142aszcza w zakresie komunikacji i mobilno\u015bci. Organizacja ta, skupiaj\u0105ca si\u0119 na zapewnianiu ludziom dost\u0119pu do technologii wspomagaj\u0105cych i sprz\u0119tu, podnosi \u015bwiadomo\u015b\u0107 spo\u0142eczn\u0105 oraz przyspiesza dzia\u0142ania na rzecz pokonania ALS.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eabe966\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_f6b7df483b0fdef4ccfcc975dad8b8a6\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__center pullquote__H4\">\n        <blockquote class=\"quote quote__H4 quote--show-marks\">Technologia przywraca to, co odbiera mi ALS. M\u00f3j g\u0142os, sprawno\u015b\u0107 ruchow\u0105 oraz zdolno\u015b\u0107 do nawi\u0105zywania kontakt\u00f3w i tworzenia.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Za\u0142o\u017cyciel i cz\u0142onek zarz\u0105du organizacji Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eac01e5\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6905eac0de1\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eac05b2\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a6905eac04c3\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eac0c8e\" class=\"column\">\n    \n\n<div\n    id=\"block_6a6905eac0a87\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Platforma stworzona z my\u015bl\u0105 o naukowcach i szybkim dzia\u0142aniu<\/h3>\n<p>Organizacja Answer ALS przekszta\u0142ci\u0142a piln\u0105 potrzeb\u0119 Steve&#8217;a Gleasona w projekt Neuromine \u2013 wsp\u00f3ln\u0105 platform\u0119 badawcz\u0105, kt\u00f3rej celem jest u\u0142atwienie wyszukiwania, filtrowania i wykorzystywania danych dotycz\u0105cych bada\u0144 nad ALS. Dzi\u0119ki temu naukowcy zyskuj\u0105 lepszy dost\u0119p do informacji, nie musz\u0105c najpierw zmaga\u0107 si\u0119 z problemami infrastrukturalnymi, zanim b\u0119d\u0105 mogli zaj\u0105\u0107 si\u0119 walk\u0105 z chorob\u0105.<\/p>\n<p>Neuromine to platforma oparta na zasadach prywatno\u015bci, bezpiecze\u0144stwa i szacunku dla os\u00f3b, kt\u00f3rych dane stanowi\u0105 podstaw\u0119 jej dzia\u0142ania, dzia\u0142aj\u0105ca w chmurze Azure. Dzi\u0119ki tej strukturze naukowcy mog\u0105 wyszukiwa\u0107 i filtrowa\u0107 odpowiednie fragmenty zbioru danych, wyodr\u0119bnia\u0107 wybrane grupy badanych oraz przenosi\u0107 dane do w\u0142asnego \u015brodowiska roboczego. Jasne powi\u0105zania z pr\u00f3bkami biologicznymi i zasobami linii kom\u00f3rkowych pomagaj\u0105 zespo\u0142om przej\u015b\u0107 od etapu odkrycia do walidacji, zamiast utkn\u0105\u0107 na etapie \u201eciekawego wyniku, ale niejasnego kolejnego kroku\u201d. Zasady zarz\u0105dzania i dost\u0119pu s\u0105 tak skonstruowane, aby portal by\u0142 szeroko dost\u0119pny \u2013 bez spowalniania rzetelnych bada\u0144.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eac1064\"\n    class=\"spacer spacer-9 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6905eadd5a8\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eac1911\" class=\"column column-vertical-align--top\">\n    \n\n\n<div\n    id=\"block_6a6905eac1338\"\n    class=\"spacer spacer-11 spacer-mobile-0 spacer--desktop-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eac150a\"\n    class=\"rich-text transition--in-up \">\n    <p class=\"--h4\">Od 72 do dw\u00f3ch tygodni<\/p>\n<p class=\"unformatted\">W przesz\u0142o\u015bci uzyskanie zbioru danych nadaj\u0105cego si\u0119 do analizy mog\u0142o zaj\u0105\u0107 od 12 do 18 miesi\u0119cy. Dzi\u0119ki platformie Neuromine naukowcy mog\u0105 przej\u015b\u0107 od sformu\u0142owania hipotezy do uzyskania dost\u0119pu do danych \u2013 oraz do pasuj\u0105cych pr\u00f3bek biologicznych \u2013 w ci\u0105gu oko\u0142o dw\u00f3ch tygodni.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eac1778\"\n    class=\"spacer spacer-0 spacer-mobile-6 spacer--mobile-only\">\n<\/div>\n\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eadd462\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_1c05abfa7d181e1b2f04071d659e67f6\"\n    class=\"media-block transition--media ticss-f39380ac media-block--small\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs.jpg 1920w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs-256x144.jpg 256w, 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8.49904 7.22947 8.30378 7.42473L7.59667 8.13184C7.40141 8.3271 7.08483 8.3271 6.88956 8.13184L4.06736 5.30964L4.06083 5.30323L3.35373 4.59612C3.15847 4.40086 3.15847 4.08427 3.35373 3.88901L6.88926 0.353478Z\" fill=\"currentColor\"\/><\/svg>    <\/span>\n    <span class=\"sr-text js-button-label\">\n        pause    <\/span>\n<\/button>\n    <\/div>    \n<div class=\"media-caption\">\n            <div class=\"media-caption__caption\">\u017bywe neurony u pacjent\u00f3w z ALS<\/div>\n        <\/div>\n<\/div>\n<\/div>\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eadd8c1\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6905eade6ca\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eaddd9f\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a6905eaddc8e\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eade5d1\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a6905eaddf8a\"\n    class=\"rich-text transition--in-up \">\n    <p>Platforma Neuromine umo\u017cliwi\u0142a realizacj\u0119 ponad 520 projekt\u00f3w badawczych \u2013 od klas licealnych po wiod\u0105ce instytucje badawcze. Dane od ponad 1100 uczestnik\u00f3w programu Answer ALS zosta\u0142y zharmonizowane i s\u0105 teraz dost\u0119pne w serwisie Neuromine wraz z baz\u0105 ALS Research Collaborative (ARC) Instytutu Rozwoju Terapii ALS (ALS Therapy Development Institute), co pozwala naukowcom analizowa\u0107 profile ponad 2500 pacjent\u00f3w z ALS w jednym miejscu. Answer ALS szacuje, \u017ce model ten mo\u017ce przyspieszy\u0107 badania nawet o 65% w ci\u0105gu najbli\u017cszych kilku lat. Po raz pierwszy naukowcy mog\u0105 analizowa\u0107 ALS na skal\u0119 i z dok\u0142adno\u015bci\u0105, kt\u00f3re pozwalaj\u0105 odkry\u0107 wzorce, kt\u00f3rych \u017caden cz\u0142owiek nie by\u0142by w stanie wykry\u0107 samodzielnie.<\/p>\n<p>Podej\u015bcia oparte na uczeniu maszynowym pozwalaj\u0105 odkrywa\u0107 nieznane dot\u0105d powi\u0105zania genetyczne \u2013 w tym obiecuj\u0105c\u0105 grup\u0119 gen\u00f3w zwan\u0105 nukleoporinami, kt\u00f3re reguluj\u0105 przep\u0142yw substancji do i z j\u0105dra kom\u00f3rkowego. Wst\u0119pne dane wskazuj\u0105, \u017ce kombinacje mutacji w tych genach mog\u0105 pom\u00f3c wyja\u015bni\u0107, dlaczego stan niekt\u00f3rych os\u00f3b pogarsza si\u0119 gwa\u0142townie, podczas gdy inne \u017cyj\u0105 przez wiele lat. Obecnie zespo\u0142y badawcze mog\u0105 zweryfikowa\u0107 te spostrze\u017cenia, przekszta\u0142caj\u0105c kom\u00f3rki krwi pacjent\u00f3w w neurony, a nast\u0119pnie wykorzystuj\u0105c mikroskopy zrobotyzowane i biosensory do obserwowania w czasie rzeczywistym przebiegu ALS wewn\u0105trz kom\u00f3rki.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eade240\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eade437\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n<div id=\"block_6a6905eb12d59\" class=\"row row--space-between column__container mobile-column-gap-6 column--layout-33-33-33\">\n    \n<div id=\"block-column_6a6905eaec32a\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_550b9922271c1eb10b82a290247c014e\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg 881w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-480x479.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-768x767.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg\"\n                                    width=\"881\"\n            height=\"880\"\n                        class=\"ratio--1-1\"\n            alt=\"Kobieta w \u015brednim wieku o blond w\u0142osach i w okularach w czarnych oprawkach, ubrana w be\u017cow\u0105 kurtk\u0119, spogl\u0105daj\u0105ca w zamy\u015bleniu w bok.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6905eaebb63\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_e1b5943268695ee000dd1c48fcd7ae5c\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Wszyscy uczestnicy mieli \u015bwiadomo\u015b\u0107, \u017ce mog\u0105 nie do\u017cy\u0107 momentu, w kt\u00f3rym zobacz\u0105 efekty swoich wysi\u0142k\u00f3w. Ich zaanga\u017cowanie by\u0142o po prostu niezwyk\u0142e.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Clare Durrett<\/div>\n                                                    <div class=\"attribution-description\">Dyrektor generalny, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eb05174\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_9174c29d8ac8c752add96db6857afb0d\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg 1192w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-480x480.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-768x767.jpg 768w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-1024x1023.jpg 1024w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg\"\n                                    width=\"1192\"\n            height=\"1191\"\n                        class=\"ratio--1-1\"\n            alt=\"Kobieta w \u015brednim wieku o blond w\u0142osach i w okularach, ubrana w czarn\u0105 bluzk\u0119, w nowoczesnym biurze z komputerami i obrazami w ramkach.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6905eb04a61\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_d73c4ded57a3e2f7a13424b43e8fa000\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Neuromine umo\u017cliwia szybkie i swobodne przesy\u0142anie danych na ca\u0142ym \u015bwiecie \u2014 dzi\u0119ki temu czas potrzebny na odkrycie nowych rozwi\u0105za\u0144 skr\u00f3ci si\u0119 o miesi\u0105ce, a mo\u017ce nawet lata.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Terri Thompson, PhD<\/div>\n                                                    <div class=\"attribution-description\">Dyrektor ds. zarz\u0105dzania danymi i kierownik organizacji Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eb12bf9\" class=\"column\">\n    \n\n<div\n    id=\"block_db06ad9921c5889ec6e05470b610ae1c\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg 772w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-480x481.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-768x769.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg\"\n                                    width=\"772\"\n            height=\"773\"\n                        class=\"ratio--1-1\"\n            alt=\"Kobieta o br\u0105zowych falowanych w\u0142osach, ubrana w bia\u0142\u0105 bluzk\u0119 w wzory, stoj\u0105ca w laboratorium naukowym, za ni\u0105 na p\u00f3\u0142kach widoczny sprz\u0119t.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6905eb12437\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_7100827e88aa9c66ed5ff056c3e68826\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Bardzo ciesz\u0105 mnie ostatnio uzyskane wyniki, dzi\u0119ki kt\u00f3rym uda\u0142o nam si\u0119 zidentyfikowa\u0107 kom\u00f3rki pochodz\u0105ce od pacjent\u00f3w z ALS na podstawie danych z projektu Answer ALS.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Julia Kaye, PhD<\/div>\n                                                    <div class=\"attribution-description\">Pracownik naukowy Gladstone Institutes<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eb13006\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6905eb1491e\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6905eb13403\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a6905eb13304\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6905eb147c6\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a6905eb135cd\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n\n<div\n    id=\"block_6a6905eb13802\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Otwarte dane \u2013 realny impuls<\/h3>\n<p>Powstaje nowy model bada\u0144 nad rzadkimi chorobami. Opiera si\u0119 on na otwarto\u015bci danych, zaawansowanych technologiach obliczeniowych oraz innowacjach tworzonych przez spo\u0142eczno\u015b\u0107, kt\u00f3re wsp\u00f3lnie skracaj\u0105 drog\u0119 od hipotezy do wniosk\u00f3w. Dla os\u00f3b cierpi\u0105cych na ALS \u2013 kt\u00f3re cz\u0119sto nie maj\u0105 czasu na czekanie \u2013 to przyspieszenie oznacza szans\u0119 na wyra\u017aniejsz\u0105 drog\u0119 do wyleczenia.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eb13aae\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n<nav\n\tclass=\"story-tags ticss-db52dfad\"\n\taria-labelledby=\"block_b0f7e1f2b0ebd18459cf8a2421675d73-topics-label\"\n\tid=\"block_b0f7e1f2b0ebd18459cf8a2421675d73\">\n\t<div class=\"story-tags__inner\">\n\t\t<span class=\"story-tags__label\" id=\"block_b0f7e1f2b0ebd18459cf8a2421675d73-topics-label\">Topics:<\/span>\n\t\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/pl\/tag\/ai\/\">AI<\/a>\n\t\t\t\t\t\t\t\t<span class=\"story-tags__pair\">\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/pl\/tag\/dane\/\">Dane<\/a>\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/pl\/tag\/opieka-zdrowotna\/\">Opieka zdrowotna<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n<\/nav>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eb14bbe\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_e838120bdec6d35633adb1cb79dd882b\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__center pullquote__H4\">\n        <blockquote class=\"quote quote__H4 quote--show-marks\"><span data-teams=\"true\">Przekszta\u0142ca indywidualne historie w zbiorow\u0105 si\u0142\u0119. Otwarte dane przyspieszaj\u0105 wszystko.<\/span><\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Za\u0142o\u017cyciel i cz\u0142onek zarz\u0105du organizacji Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6905eb15301\"\n    class=\"spacer spacer-9 spacer-mobile-6\">\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Osoby cierpi\u0105ce na ALS decyduj\u0105 si\u0119 udost\u0119pnia\u0107 swoje dane za po\u015brednictwem serwisu Neuromine, co pozwala naukowcom wsp\u00f3lnie przyspieszy\u0107 prace<\/p>\n","protected":false},"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":true},"tags":[330,284,485],"class_list":["post-42342","stories","type-stories","status-publish","hentry","tag-ai","tag-dane","tag-opieka-zdrowotna","collections-thriving-communities","entry","page-content"],"acf":{"featured_media_featured_scrim_color":"#000000","featured_media_card_ratio":"1-1","featured_media_card_image":30528,"featured_media_card_video":"","featured_media_card_video_button_desc":"","featured_media_featured_image":30555,"featured_media_featured_video":"","featured_media_featured_video_button_desc":"","featured_media_featured_headline":"","featured_media_featured_excerpt":"","featured_media_search_image":29485,"featured_media_search_card_image":30582,"featured_media_search_card_video":"","featured_media_search_card_video_button_desc":"","disable_segoe_serif":false,"settings":{"external_url":[""],"collections":6}},"_links":{"self":[{"href":"https:\/\/unlocked.microsoft.com\/pl\/wp-json\/wp\/v2\/stories\/42342","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unlocked.microsoft.com\/pl\/wp-json\/wp\/v2\/stories"}],"about":[{"href":"https:\/\/unlocked.microsoft.com\/pl\/wp-json\/wp\/v2\/types\/stories"}],"wp:attachment":[{"href":"https:\/\/unlocked.microsoft.com\/pl\/wp-json\/wp\/v2\/media?parent=42342"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unlocked.microsoft.com\/pl\/wp-json\/wp\/v2\/tags?post=42342"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}