{"id":42036,"date":"2026-03-26T10:09:33","date_gmt":"2026-03-26T17:09:33","guid":{"rendered":"https:\/\/unlocked.microsoft.com\/?post_type=stories&#038;p=42036"},"modified":"2026-07-10T10:13:39","modified_gmt":"2026-07-10T17:13:39","slug":"wanneer-gegevens-sneller-bewegen-beweegt-de-hoop-mee","status":"publish","type":"stories","link":"https:\/\/unlocked.microsoft.com\/nl\/wanneer-gegevens-sneller-bewegen-beweegt-de-hoop-mee\/","title":{"rendered":"Wanneer gegevens sneller bewegen, beweegt de hoop mee"},"content":{"rendered":"\n<div\n    id=\"block_3eec0e62f46b06914f545aa73484c211\"\n    class=\"split-feature split-feature--inset-image split-feature--left split-feature--bottom js-split-feature js-parallax \">\n    <div class=\"split-feature__content js-split-feature-content\">\n        <div class=\"transition--in-up\">\n            <div class=\"split-feature__header-wrapper\">\n                                <h1 class=\"split-feature__header split-feature__header__size-h2\">\n                                    Wanneer gegevens sneller bewegen, beweegt de hoop mee                                <\/h1>\n                                <\/div>\n                <div class=\"split-feature__excerpt-wrapper\">\n            <div class=\"split-feature__excerpt\">Mensen met ALS kiezen ervoor om hun gegevens te delen via Neuromine, zodat onderzoekers samen sneller kunnen gaan<\/div>                                <\/div>\n    <\/div>\n<\/div>\n<div class=\"split-feature__media transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01.jpg 1356w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-256x256.jpg 256w, 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spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6767cb2ac61\" class=\"row row--space-between column__container mobile-column-gap-1 column--layout-40-60\">\n    \n<div id=\"block-column_6a6767cb27086\" class=\"column column-vertical-align--boven\">\n    \n<div\n    id=\"block_769ba6b98c27388e71e0b0d72b06c166\"\n    class=\"share-block \">\n    \n<section\n    class=\"social-share js-social-share social-share--left\"\n        aria-label=\"Share Wanneer gegevens sneller bewegen, beweegt de hoop mee on social media\"\n    tabindex=\"0\"\n    >\n\n    <div class=\"social-share__item social-share__btn--link-copied js-social-share-link-copied\"\n        aria-hidden=\"true\"\n    >\n        <div class=\"social-share__btn--link-copied__wrapper\">\n            <svg class=\"svg-icon\"  width=\"10\" height=\"8\" aria-hidden=\"true\"  role=\"img\" focusable=\"false\" viewBox=\"0 0 10 8\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M1 3.52148L3.8125 6L9 1\" 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xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M7.35547 9.06274H3.41797V22.0002H7.35547V9.06274Z\" fill=\"currentColor\"\/><path d=\"M16.9197 9.06274C14.668 9.06274 14.0436 9.80074 13.543 10.7502V9.06274H9.60547V22.0002H13.543V14.6877C13.543 13.5627 13.543 12.4377 15.5117 12.4377C17.4805 12.4377 17.4805 13.5627 17.4805 14.6877V22.0002H21.418V14.6877C21.418 11.3127 20.8555 9.06274 16.9197 9.06274Z\" fill=\"currentColor\"\/><path d=\"M5.38672 7.9375C6.47403 7.9375 7.35547 7.05606 7.35547 5.96875C7.35547 4.88144 6.47403 4 5.38672 4C4.29941 4 3.41797 4.88144 3.41797 5.96875C3.41797 7.05606 4.29941 7.9375 5.38672 7.9375Z\" fill=\"currentColor\"\/><title id=\"icon-6a6767cb261e8\">LinkedIn<\/title><\/svg>    <\/a>\n\n        \n    <\/div>\n\n    \n    <div\n        class=\"sr-text js-social-status\"\n        role=\"status\"\n    ><\/div>\n<\/section>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cb262fe\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_4c9aff32f72072a0c2020ab2ca09175f\"\n    class=\"publication-date \">\n    <p class=\"publication-date__text\">maart 26, 2026<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cb2699a\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cb26b88\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Naar schatting zijn er zo&#8217;n 450.000 mensen wereldwijd met ALS.<\/h4>\n<p class=\"--h5\">Er is geen behandeling.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cb2aaf1\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_6a6767cb275e2\"\n    class=\"rich-text transition--in-up \">\n    <p>Voor mensen met ALS telt elke seconde. Na diagnose hebben de meeste mensen nog slechts 2 tot 5 jaar met vrienden en dierbaren. Families leren een nieuwe woordenschat: voedingssondes, mobiliteitshulpmiddelen, stemverlies, terwijl een andere, stillere klok begint te tikken in onderzoekslabo&#8217;s. De lange onderzoekstijdlijnen komen vaak niet overeen met de urgentie in de kliniek. En dat is nu de discrepantie die <a href=\"https:\/\/www.answerals.org\/\" target=\"_blank\" rel=\"noopener\">Answer ALS<\/a> wil veranderen.<\/p>\n<p>Answer ALS begon met het eenvoudige, maar krachtige idee dat mensen met ALS meer zijn dan slechts pati\u00ebnten in het systeem. Ze kunnen actief bijdragen aan de vooruitgang. Wanneer mensen ervoor kiezen om hun gegevens veilig, verantwoord en voor het grotere goed te delen, kan dit een heel andere toekomst voor onderzoek ontgrendelen.<\/p>\n<p>Answer ALS verenigt onderzoekers, mensen met ALS en pleitbezorgers in een open, gezamenlijke inspanning om het ontdekken van behandelingen en remedies te versnellen. Het doel is om veilige toegang te bieden tot gedetailleerde klinische en biologische gegevens, alsook tot bijbehorende biologische monsters. Op die manier kunnen wetenschappers biologische subgroepen, biomarkers en therapeutische doelen achterhalen. Maar historisch gezien was het hebben van gegevens niet hetzelfde als ze delen op een manier die onderzoekers effectief hielp sneller te gaan.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cb2b91e\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_2e8a04d754460e06d1d3c1dd8416e348\" class=\"video-player\">\n    <div id=\"videoplayer-1\" class=\"video-player__wrapper js-video-player theme-overlay  has-overlay-image\" aria-label=\"Bekijk &quot;Elke seconde telt&quot;\">\n        <div\n            id=\"video-player-overlay-5347188d-09d2-4e87-ad4f-f41d787a44ee\"\n            class=\"video-player__overlay js-video-player-overlay\"\n            data-label-video-title=\"\"Elke seconde telt\"\"\n            data-label-desktop=\"A man using assistive breathing equipment holds a young girl in a white shirt as they both look upward together indoors.\"\n            data-label-mobile=\"\">\n            <div 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column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6767cb93e01\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_6a6767cb93ce5\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cb9429f\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_6a6767cb93fb2\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">De uitdaging die zorgde voor een tempoversnelling<\/h3>\n<p>Answer ALS had vitale gegevens: een enorm multi-omics-beeld van ALS van verschillende deelnemers, waaronder gegevens zoals volledige genoomsequencing, uitgebreide longitudinale klinische gegevens en van pati\u00ebnt afkomstige stamcelgebaseerde neurale modellen. Toch was de eerste poging om dit te delen via een academische instelling nooit op schaal ontworpen.<\/p>\n<p>In werkelijkheid deed het meer dienst als een basisopslaglocatie of een plaats waar alles werd bijgehouden, maar niet op een overzichtelijke manier. Hoewel onderzoekers technisch specifieke cohorten konden selecteren, vroeg dit om kennis van opdrachtregels en een hoog niveau van computerkennis. Voor veel basiswetenschappers en clinici waren zelfs eenvoudige vragen als &#8220;Kan ik gegevens isoleren over vrouwen met ALS?&#8221; moeilijk te beantwoorden zonder aanzienlijke technische ondersteuning. Hierdoor werd het vermogen van het platform tot effici\u00ebnte selfservice-ontdekking beperkt.<\/p>\n<p>Erger nog, door de workflow was er eigenlijk maar een kleine groep die kon deelnemen. Als je niet vertrouwd was met de opdrachtregel of geen degelijke\u00a0computer- en opslagvaardigheden had, was deze &#8216;open&#8217; dataset\u00a0niet echt open. 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class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Ga sneller, financier grootser en werk meedogenlozer samen<\/h4>\n<p>Voor Steve Gleason is dat een richtlijn.<\/p>\n<p>De voormalige New Orleans Saints-verdediger heeft geholpen bij het bepalen wat mogelijk is voor mensen met ALS. Steve, gediagnosticeerd in 2011, zette zijn eigen ervaring om in een platform voor actie. Hij dringt aan op betere ondersteuning, betere technologie en snellere vooruitgang in onderzoek.<\/p>\n<blockquote>\n<h6 class=\"--h6\">&#8220;Ik zeg dat ik de diagnose ALS kreeg, zodat miljoenen mensen in onze toekomst die diagnose niet krijgen,&#8221; aldus Steve Gleason, oprichter en bestuurslid, Answer ALS.<\/h6>\n<\/blockquote>\n<p>Veel NFL-fans herinneren hem voor \u00e9\u00e9n iconisch moment: de geblokkeerde punt-trap in een wedstrijd van 2006. In 2012 werd dit vereeuwigd in een bronzen standbeeld buiten de Superdome. Tegenwoordig helpt hij de barri\u00e8res te overwinnen die de toegang en vooruitgang voor anderen met ALS vertragen.<\/p>\n<p>Als gerenommeerde ALS-pleitbezorger dringt Steve erop aan dat mensen met ALS\u00a0niet zouden hoeven te wachten op een behandeling om een zinvol leven te leiden.\u00a0Via een andere non-profitorganisatie, <a href=\"https:\/\/teamgleason.org\/\" target=\"_blank\" rel=\"noopener\">Team Gleason<\/a>,\u00a0heeft hij duizenden mensen met ALS en andere neuromusculaire aandoeningen geholpen met toegang tot praktische hulpmiddelen en diensten die de onafhankelijkheid nu beschermen. Zeker rond communicatie en mobiliteit. De non-profitorganisatie, gericht op het verbinden van mensen met ondersteunende technologie en apparatuur, maakt mensen bewust van en versnelt het momentum om een einde te maken aan ALS.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cba5f75\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_f330957d0fdcc3d67fedc507d57c0ffc\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__midden pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\">Technologie geeft terug wat ALS steelt. Mijn stem, mijn mobiliteit en mijn vermogen om verbinding te maken en te cre\u00ebren.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Oprichter en bestuurslid, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cba78c9\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6767cba829b\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6767cba7ca2\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a6767cba7bb3\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cba8123\" class=\"column\">\n    \n\n<div\n    id=\"block_6a6767cba7e7b\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Gemaakt voor onderzoekers en ontworpen voor snelheid<\/h3>\n<p>Answer ALS vertaalde de urgentie van Steve Gleason in\u00a0Neuromine: een gedeelde onderzoekshub ontworpen zodat ALS-onderzoeksgegevens gemakkelijker te vinden, te filteren en te gebruiken zijn. Hierdoor hebben onderzoekers meer toegang zonder dat ze met infrastructuur moeten worstelen voordat ze de ziekte kunnen bestrijden.<\/p>\n<p>Neuromine, gebouwd rond privacy, beveiliging en respect voor de mensen wiens gegevens worden gebruikt, draait op Azure. Zo kunnen onderzoekers relevante delen van de dataset vinden via zoeken en filteren, gerichte cohorten ophalen en gegevens toevoegen aan hun eigen werkomgeving. Door een duidelijk verband met biologische monsters\u00a0en cellijnbronnen gaan teams van ontdekking naar validatie in plaats van vast te lopen op &#8216;interessant resultaat, onduidelijke volgende stap&#8217;. Beheer en toegang zijn gestructureerd om de portal breed inzetbaar te houden, zonder legitiem onderzoek te vertragen.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cba84f9\"\n    class=\"spacer spacer-9 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6767cbc94fb\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6767cba8d5d\" class=\"column column-vertical-align--boven\">\n    \n\n\n<div\n    id=\"block_6a6767cba87cf\"\n    class=\"spacer spacer-11 spacer-mobile-0 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cba89a5\"\n    class=\"rich-text transition--in-up \">\n    <p class=\"--h4\">Van 72 naar twee weken<\/p>\n<p class=\"unformatted\">Vroeger kon het 12 tot 18 maanden duren om tot een analyseerbare dataset te komen. 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  class=\"rich-text transition--in-up \">\n    <p>Neuromine\u00a0heeft meer dan 520 onderzoeksprojecten mogelijk gemaakt, gaande van middelbare klaslokalen tot toonaangevende onderzoeksinstellingen. De data van meer dan 1.100 Answer ALS-deelnemers is nu geharmoniseerd en beschikbaar in\u00a0Neuromine\u00a0naast het ALS Research Collaborative (ARC) van het ALS Therapy Development Institute, waardoor onderzoekers meer dan 2.500 ALS-pati\u00ebntprofielen op \u00e9\u00e9n plek konden bevragen. Answer ALS schat dat dit model de komende jaren de onderzoekstijdlijnen met wel 65% zou kunnen versnellen. Voor het eerst kunnen onderzoekers ALS op een schaal en diepte analyseren die patronen onthullen die niemand alleen zou kunnen opsporen.<\/p>\n<p>Machine learning-benaderingen brengen voordien onzichtbare genetische relaties aan het licht. Dit gaat onder andere om een veelbelovende set genen die kernpori\u00ebn worden genoemd en het verkeer in en uit de kern van de cel reguleren. Vroege signalen suggereren dat combinaties van mutaties in deze genen kan helpen verklaren waarom sommige mensen snel achteruitgaan terwijl anderen nog vele jaren leven. Teams kunnen die inzichten nu valideren door bloedcellen van pati\u00ebnten om te zetten in neuronen en vervolgens robotmicroscopen en biosensoren te gebruiken om in real time te kijken hoe ALS zich ontvouwt in de cel.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cbca043\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cbca289\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n<div id=\"block_6a6767cc06ff3\" class=\"row row--space-between column__container mobile-column-gap-6 column--layout-33-33-33\">\n    \n<div id=\"block-column_6a6767cbdaece\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_355af9226bf4295a264cbe32a01dd798\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg 881w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-480x479.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-768x767.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg\"\n                                    width=\"881\"\n            height=\"880\"\n                        class=\"ratio--1-1\"\n            alt=\"Vrouw van middelbare leeftijd met blond haar en zwarte bril in een bruin jasje die bedachtzaam opzij kijkt.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6767cbda76f\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_5ac287437a7d4e9dd6c37d8d2f4e7d8f\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__links pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Iedereen die deelnam, wist dat ze mogelijk de resultaten niet meer zouden meemaken. Hun inzet was gewoon buitengewoon.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Clare Durrett<\/div>\n                                                    <div class=\"attribution-description\">Managing Director, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cbeb28f\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_1f0370a5ca3e6e49993d4323506f2c6d\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg 1192w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-480x480.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-768x767.jpg 768w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-1024x1023.jpg 1024w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg\"\n                                    width=\"1192\"\n            height=\"1191\"\n                        class=\"ratio--1-1\"\n            alt=\"Vrouw van middelbare leeftijd met blond haar en bril in een zwart shirt in modern kantoor met computers en ingelijste kunstwerken.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6767cbeab49\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_83921f5a66adf80dd52f3e22ae530584\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__links pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Omdat\u00a0Neuromine\u00a0snel en vrij gegevens kan aanleveren over de hele wereld, zal de ontdekkingstijd verminderen met maanden, misschien zelfs jaren.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Terri Thompson, Doctoraat<\/div>\n                                                    <div class=\"attribution-description\">Directeur, Data Management en Program Manager Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cc06ea1\" class=\"column\">\n    \n\n<div\n    id=\"block_6985c0129f34a4a52254c9b58395c455\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg 772w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-480x481.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-768x769.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg\"\n                                    width=\"772\"\n            height=\"773\"\n                        class=\"ratio--1-1\"\n            alt=\"Vrouw met golvend bruin haar in een witte blouse met dessin staat in een wetenschappelijk laboratorium met apparatuur op planken achter haar.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a6767cc0675e\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_edfae8d4b635ad6a817239768257350b\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__links pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Ik ben erg enthousiast over een aantal recente resultaten waarbij we door het gebruik van data van Answer ALS cellen konden discrimineren die komen van pati\u00ebnten met ALS.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Julia Kaye, doctoraat<\/div>\n                                                    <div class=\"attribution-description\">Onderzoeker, Gladstone Institutes<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cc0729e\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a6767cc0b5f9\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a6767cc076da\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a6767cc075d6\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a6767cc0b4f0\" class=\"column column-vertical-align--boven\">\n    \n\n<div\n    id=\"block_6a6767cc078a5\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n\n<div\n    id=\"block_6a6767cc07aa8\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Open data, echt momentum<\/h3>\n<p>Er is een nieuw model voor onderzoek naar zeldzame ziektes in opkomst. Een model dat pleit voor open data, geavanceerde berekening en community-gedreven innovatie die samenwerken om de weg van hypothese naar inzicht te verkorten. Voor mensen met ALS, die vaak de tijd niet hebben om te wachten, is deze versnelling de mogelijkheid tot een duidelijker pad naar een remedie.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cc07d1f\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--alle-only\">\n<\/div>\n\n\n\n<nav\n\tclass=\"story-tags ticss-db52dfad\"\n\taria-labelledby=\"block_c23addb25e48feebd138dace204a43a7-topics-label\"\n\tid=\"block_c23addb25e48feebd138dace204a43a7\">\n\t<div class=\"story-tags__inner\">\n\t\t<span class=\"story-tags__label\" id=\"block_c23addb25e48feebd138dace204a43a7-topics-label\">Topics:<\/span>\n\t\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/nl\/tag\/ai\/\">AI<\/a>\n\t\t\t\t\t\t\t\t<span class=\"story-tags__pair\">\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/nl\/tag\/gegevens\/\">Gegevens<\/a>\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/nl\/tag\/gezondheidszorg\/\">Gezondheidszorg<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n<\/nav>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cc0b8a7\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--alle-only\">\n<\/div>\n\n\n\n\n<div id=\"block_dbdacd654f7a50ffa463e8d1b62c957e\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__midden pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\"><span data-teams=\"true\">Het verandert individuele verhalen in een gezamenlijke kracht. Open data versnelt alles.<\/span><\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Oprichter en bestuurslid, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a6767cc0bfbd\"\n    class=\"spacer spacer-9 spacer-mobile-6 spacer--alle-only\">\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Mensen met ALS kiezen ervoor om hun gegevens te delen via Neuromine, zodat onderzoekers samen sneller kunnen handelen<\/p>\n","protected":false},"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":true},"tags":[384,293,410],"class_list":["post-42036","stories","type-stories","status-publish","hentry","tag-ai","tag-gegevens","tag-gezondheidszorg","collections-thriving-communities","entry","page-content"],"acf":{"featured_media_featured_scrim_color":"#000000","featured_media_card_ratio":"1-1","featured_media_card_image":30515,"featured_media_card_video":"","featured_media_card_video_button_desc":"","featured_media_featured_image":30542,"featured_media_featured_video":"","featured_media_featured_video_button_desc":"","featured_media_featured_headline":"","featured_media_featured_excerpt":"","featured_media_search_image":29472,"featured_media_search_card_image":30569,"featured_media_search_card_video":"","featured_media_search_card_video_button_desc":"","disable_segoe_serif":false,"settings":{"external_url":[""],"collections":6}},"_links":{"self":[{"href":"https:\/\/unlocked.microsoft.com\/nl\/wp-json\/wp\/v2\/stories\/42036","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unlocked.microsoft.com\/nl\/wp-json\/wp\/v2\/stories"}],"about":[{"href":"https:\/\/unlocked.microsoft.com\/nl\/wp-json\/wp\/v2\/types\/stories"}],"wp:attachment":[{"href":"https:\/\/unlocked.microsoft.com\/nl\/wp-json\/wp\/v2\/media?parent=42036"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unlocked.microsoft.com\/nl\/wp-json\/wp\/v2\/tags?post=42036"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}