{"id":42037,"date":"2026-03-26T10:09:33","date_gmt":"2026-03-26T17:09:33","guid":{"rendered":"https:\/\/unlocked.microsoft.com\/?post_type=stories&#038;p=42037"},"modified":"2026-07-10T10:13:36","modified_gmt":"2026-07-10T17:13:36","slug":"kun-data-liikkuu-nopeammin-toivo-kasvaa","status":"publish","type":"stories","link":"https:\/\/unlocked.microsoft.com\/fi\/kun-data-liikkuu-nopeammin-toivo-kasvaa\/","title":{"rendered":"Kun data liikkuu nopeammin, toivo kasvaa"},"content":{"rendered":"\n<div\n    id=\"block_ea9dec67a3e241044079277ace11d79d\"\n    class=\"split-feature split-feature--inset-image split-feature--oikea split-feature--alaosa js-split-feature js-parallax \">\n    <div class=\"split-feature__content js-split-feature-content\">\n        <div class=\"transition--in-up\">\n            <div class=\"split-feature__header-wrapper\">\n                                <h1 class=\"split-feature__header split-feature__header__size-h2\">\n                                    Kun data liikkuu nopeammin, toivo kasvaa                                <\/h1>\n                                <\/div>\n                <div class=\"split-feature__excerpt-wrapper\">\n            <div class=\"split-feature__excerpt\">Ihmiset, joilla on ALS, jakavat tietojaan Neuromine-dataportaalin kautta \u2013 n\u00e4in tutkijat edistyv\u00e4t nopeammin, yhdess\u00e4<\/div>                                <\/div>\n    <\/div>\n<\/div>\n<div class=\"split-feature__media transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01.jpg 1356w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-256x256.jpg 256w, 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spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecadb254\" class=\"row row--space-between column__container mobile-column-gap-1 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecad7468\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n<div\n    id=\"block_ba830fb437b1782be35d78e82d0af323\"\n    class=\"share-block \">\n    \n<section\n    class=\"social-share js-social-share social-share--left\"\n        aria-label=\"Share Kun data liikkuu nopeammin, toivo kasvaa on social media\"\n    tabindex=\"0\"\n    >\n\n    <div class=\"social-share__item social-share__btn--link-copied js-social-share-link-copied\"\n        aria-hidden=\"true\"\n    >\n        <div class=\"social-share__btn--link-copied__wrapper\">\n            <svg class=\"svg-icon\"  width=\"10\" height=\"8\" aria-hidden=\"true\"  role=\"img\" focusable=\"false\" viewBox=\"0 0 10 8\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M1 3.52148L3.8125 6L9 1\" stroke=\"currentColor\" stroke-width=\"1.5\"\/><\/svg>            Linkki kopioitu        <\/div>\n    <\/div>\n\n    \n    \n    <div\n        id=\"e1db9888-8995-480a-83b2-ba755c2a2c25-share-options\"\n        class=\"social-share__item social-share__btn-group js-social-share-btn-group\"\n    >\n    \n        <button\n        class=\"js-social-share-copy social-share__link social-share__link--copy\"\n        data-text=\"https:\/\/unlocked.microsoft.com\/fi\/kun-data-liikkuu-nopeammin-toivo-kasvaa\/\"\n        aria-label=\"Kopioi linkki leikep\u00f6yd\u00e4lle\"\n            >\n        <svg class=\"svg-icon\" width=\"24\" height=\"24\" aria-hidden=\"true\" aria-labelledby=\"icon-6a7a9ecad60c2\" role=\"img\" focusable=\"false\" viewBox=\"0 0 24 24\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path fill-rule=\"evenodd\" clip-rule=\"evenodd\" d=\"M18.5 17C18.2239 17 18 16.7761 18 16.5V4.5H8.5C8.22386 4.5 8 4.27614 8 4V3C8 2.72386 8.22386 2.5 8.5 2.5H19H19.5C19.7761 2.5 20 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xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M7.35547 9.06274H3.41797V22.0002H7.35547V9.06274Z\" fill=\"currentColor\"\/><path d=\"M16.9197 9.06274C14.668 9.06274 14.0436 9.80074 13.543 10.7502V9.06274H9.60547V22.0002H13.543V14.6877C13.543 13.5627 13.543 12.4377 15.5117 12.4377C17.4805 12.4377 17.4805 13.5627 17.4805 14.6877V22.0002H21.418V14.6877C21.418 11.3127 20.8555 9.06274 16.9197 9.06274Z\" fill=\"currentColor\"\/><path d=\"M5.38672 7.9375C6.47403 7.9375 7.35547 7.05606 7.35547 5.96875C7.35547 4.88144 6.47403 4 5.38672 4C4.29941 4 3.41797 4.88144 3.41797 5.96875C3.41797 7.05606 4.29941 7.9375 5.38672 7.9375Z\" fill=\"currentColor\"\/><title id=\"icon-6a7a9ecad610e\">LinkedIn<\/title><\/svg>    <\/a>\n\n        \n    <\/div>\n\n    \n    <div\n        class=\"sr-text js-social-status\"\n        role=\"status\"\n    ><\/div>\n<\/section>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecad6211\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_f892166fc7b5c898031692c4032fc34b\"\n    class=\"publication-date \">\n    <p class=\"publication-date__text\">26 maaliskuun, 2026<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecad6a3c\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecad6c47\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Arviolta 450 000 ihmist\u00e4 maailmassa sairastaa ALS:\u00e4\u00e4.<\/h4>\n<p class=\"--h5\">Parannuskeinoa ei tunneta.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecadb0eb\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_6a7a9ecad79b4\"\n    class=\"rich-text transition--in-up \">\n    <p>Ihmisille, joilla on ALS, jokainen sekunti on t\u00e4rke\u00e4. Diagnoosin j\u00e4lkeen monilla on vain 2\u20135 vuotta aikaa viett\u00e4\u00e4 yst\u00e4vien ja l\u00e4heisten kanssa. Perheet oppivat kokonaan uuden sanaston \u2013 sy\u00f6tt\u00f6letkut, liikkumisen apuv\u00e4lineet, \u00e4\u00e4nen menetys \u2013 samalla kun toinen, hiljaisempi kello alkaa tikitt\u00e4\u00e4 tutkimuslaboratorioissa.Tutkimus etenee usein paljon hitaammin kuin tilanteen kiireellisyys vaatisi \u2013 t\u00e4t\u00e4 ep\u00e4suhtaa <a href=\"https:\/\/www.answerals.org\/\" target=\"_blank\" rel=\"noopener\">Answer ALS<\/a> pyrkii muuttamaan.<\/p>\n<p>Answer ALS sai alkunsa yksinkertaisesta mutta merkitt\u00e4v\u00e4st\u00e4 ajatuksesta \u2013 ALS:\u00e4\u00e4 sairastavat ihmiset ovat enemm\u00e4n kuin vain potilaita hoitoj\u00e4rjestelm\u00e4ss\u00e4. He voivat aktiivisesti vaikuttaa tutkimuksen edistymiseen. Kun ihmiset jakavat tietonsa \u2013 turvallisesti, vastuullisesti ja yhteisen hyv\u00e4n nimiss\u00e4 \u2013 tutkimuksen tulevaisuus voi alkaa n\u00e4ytt\u00e4\u00e4 aivan uudenlaiselta.<\/p>\n<p>Answer ALS on avoin yhteisty\u00f6hanke, joka yhdist\u00e4\u00e4 tutkijat, ALS:\u00e4\u00e4 sairastavat ihmiset ja ALS-yhteis\u00f6n vaikuttajat nopeuttaakseen hoitojen ja parannuskeinojen kehitt\u00e4mist\u00e4. Tavoitteena on tarjota tutkijoille suojattu p\u00e4\u00e4sy yksityiskohtaisiin kliinisiin ja biologisiin tietoihin sek\u00e4 niihin liittyviin biologisiin n\u00e4ytteisiin, jotta he voivat tunnistaa biologisia alaryhmi\u00e4, biomarkkereita ja uusia terapeuttisia kohteita. Historiallisesti datan olemassaolo ei kuitenkaan ole ollut sama asia kuin sen jakaminen tavalla, joka auttaisi tutkijoita edistym\u00e4\u00e4n nopeammin.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecadbe45\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_dd272bbc20b1a945714aa779f3e38527\" class=\"video-player\">\n    <div id=\"videoplayer-1\" class=\"video-player__wrapper js-video-player theme-overlay  has-overlay-image\" aria-label=\"Katso &quot;Jokainen sekunti on t\u00e4rke\u00e4&quot;\">\n        <div\n            id=\"video-player-overlay-81eaf8bd-8a11-48a6-84c1-b734cb010cd1\"\n            class=\"video-player__overlay js-video-player-overlay\"\n            data-label-video-title=\"\"Jokainen sekunti on t\u00e4rke\u00e4\"\"\n            data-label-desktop=\"A man using assistive breathing equipment holds a young girl in a white shirt as they both look upward together indoors.\"\n            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column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb30b12\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_6a7a9ecb30a06\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb30f71\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_6a7a9ecb30ccd\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Haaste, joka muutti vauhdin<\/h3>\n<p>Answer ALS:lla oli hallussaan arvokasta dataa: osallistujien aineistojen pohjalta saatu laaja, erilaisia biologisia tietotasoja kattava n\u00e4kym\u00e4 ALS:\u00e4\u00e4n, joka sis\u00e4lsi muun muassa koko genomin sekvensointidataa, kattavaa pitkitt\u00e4isdataa sek\u00e4 potilaiden kantasoluista kehitettyj\u00e4 hermosolumalleja. Ensimm\u00e4ist\u00e4 yrityst\u00e4 jakaa dataa \u2013 akateemisen instituution kautta \u2013 ei kuitenkaan ollut suunniteltu laajamittaiseen k\u00e4ytt\u00f6\u00f6n.<\/p>\n<p>K\u00e4yt\u00e4nn\u00f6ss\u00e4 ratkaisu toimi enemm\u00e4nkin perustason tiedostovarastona \u2013 paikkana, johon kaikki aineisto oli tallennettu, mutta jota ei ollut helppo k\u00e4ytt\u00e4\u00e4 tai selata. Vaikka tutkijat pystyiv\u00e4t teknisesti valitsemaan tiettyj\u00e4 kohortteja, se edellytti komentorivin k\u00e4ytt\u00f6\u00e4 ja vahvaa laskennallista osaamista. Monille perustutkijoille ja kliinikoille jopa yksinkertaisiin kysymyksiin, kuten &#8221;Voinko tarkastella vain ALS:\u00e4\u00e4 sairastavia naisia koskevaa dataa?&#8221;, oli vaikea l\u00f6yt\u00e4\u00e4 vastausta ilman merkitt\u00e4v\u00e4\u00e4 teknist\u00e4 tukea. T\u00e4m\u00e4 rajoitti alustan kyky\u00e4 tukea tutkimusaineiston tehokasta ja itsen\u00e4ist\u00e4 hy\u00f6dynt\u00e4mist\u00e4.<\/p>\n<p>Viel\u00e4 ongelmallisempaa oli, ett\u00e4 k\u00e4yt\u00e4nn\u00f6ss\u00e4 t\u00e4m\u00e4 rajasi osallistujajoukkoa. Jos ei hallinnut komentorivin k\u00e4ytt\u00f6\u00e4 tai k\u00e4ytett\u00e4viss\u00e4 ei ollut vahvaa laskenta- ja tallennusosaamista, avoimeksi tarkoitettu aineisto ei todellisuudessa ollut kovin avoin. Lis\u00e4ksi alustaa ei ollut suunniteltu turvalliseksi, julkisesti k\u00e4ytett\u00e4v\u00e4ksi palveluksi \u2013 vaikka juuri se on Answer ALS:n toiminnan ydin. Siksi aineiston vastuullinen jakaminen maailmanlaajuisesti ja laajassa mittakaavassa oli vaikeaa.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb312ed\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecb3dc11\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb3d4b7\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_a3fa7671ca884deea24b07f0c568546e\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-video js-media-video\">\n            <div\n            class=\"media-video__wrapper\"\n                        role=\"presentation\"\n                    >\n\n                    <video\n                id=\"video-2\"\n                class=\"ratio--4-5\"\n                loop                preload=\"auto\"\n                muted                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Suuremmin. Yhdess\u00e4.<\/h4>\n<p>Steve Gleasonille t\u00e4m\u00e4 on toimintaperiaate.<\/p>\n<p>New Orleans Saintsin entinen pelaaja Steve Gleason on auttanut m\u00e4\u00e4rittelem\u00e4\u00e4n uudelleen sen, mihin ALS:\u00e4\u00e4 sairastavat ihmiset pystyv\u00e4t. Vuonna 2011 diagnoosin saanut Steve muutti oman kokemuksensa toiminnaksi ja alkoi tehd\u00e4 t\u00f6it\u00e4 paremman tuen, paremman teknologian ja tutkimuksen nopeamman edistymisen eteen.<\/p>\n<blockquote>\n<h6 class=\"--h6\">&#8221;Sanon aina, ett\u00e4 sairastuin ALS:\u00e4\u00e4n, jotta miljoonat ihmiset tulevaisuudessa s\u00e4\u00e4styisiv\u00e4t silt\u00e4&#8221;, sanoo Steve Gleason, perustaja ja hallituksen j\u00e4sen, Answer ALS.<\/h6>\n<\/blockquote>\n<p>Monet NFL-fanit muistavat Steve Gleasonin yhdest\u00e4 ikonisesta hetkest\u00e4 \u2013 torjutusta potkusta vuoden 2006 ottelussa. Vuonna 2012 h\u00e4nen torjuntahetke\u00e4\u00e4n ikuistava pronssipatsas pystytettiin Superdomen ulkopuolelle. Nyky\u00e4\u00e4n h\u00e4n auttaa poistamaan esteit\u00e4, jotka hidastavat ALS:\u00e4\u00e4 sairastavien ihmisten p\u00e4\u00e4sy\u00e4 heid\u00e4n tarvitsemiinsa resursseihin ja jarruttavat tutkimuksen edistymist\u00e4.<\/p>\n<p>Pitk\u00e4aikaisena ALS:n puolestapuhujana Steve on korostanut, ettei ALS:\u00e4\u00e4 sairastavien pit\u00e4isi joutua odottamaan parannuskeinoa voidakseen el\u00e4\u00e4 merkityksellist\u00e4 el\u00e4m\u00e4\u00e4. Toisen voittoa tavoittelemattoman j\u00e4rjest\u00f6ns\u00e4, <a href=\"https:\/\/teamgleason.org\/\" target=\"_blank\" rel=\"noopener\">Team Gleasonin<\/a>, kautta h\u00e4n on auttanut tuhansia ALS:\u00e4\u00e4 ja muita neuromuskulaarisia sairauksia sairastavia ihmisi\u00e4 saamaan k\u00e4ytt\u00f6\u00f6ns\u00e4 k\u00e4yt\u00e4nn\u00f6n apuv\u00e4lineit\u00e4 ja palveluja, jotka tukevat itsen\u00e4isyytt\u00e4 jo nyt \u2013 erityisesti viestinn\u00e4n ja liikkumisen osalta. J\u00e4rjest\u00f6 auttaa ihmisi\u00e4 saamaan k\u00e4ytt\u00f6\u00f6ns\u00e4 tarvitsemansa apuv\u00e4lineteknologian ja laitteet, lis\u00e4\u00e4 tietoisuutta ALS:st\u00e4 sek\u00e4 vauhdittaa pyrkimyksi\u00e4 sairauden voittamiseksi.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb3de82\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_15ecfbaa297b35546f0be782a0840dd7\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__keskitetty pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\">Teknologia antaa takaisin sen, mit\u00e4 ALS on vienyt. \u00c4\u00e4nen, liikuntakyvyn, mahdollisuuden olla yhteydess\u00e4 muihin ja luoda.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Perustaja ja hallituksen j\u00e4sen, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb3f5ed\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecb3fe64\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb3f9a9\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a7a9ecb3f8c4\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb3fd29\" class=\"column\">\n    \n\n<div\n    id=\"block_6a7a9ecb3fb5a\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Suunniteltu tutkijoille ja nopeuttamaan tutkimusta<\/h3>\n<p>Vastauksena Steve Gleasonin kokemaan tarpeeseen nopeuttaa tutkimuksen etenemist\u00e4 Answer ALS kehitti Neurominen \u2013 yhteisen tutkimusalustan, joka helpottaa ALS:\u00e4\u00e4 koskevan tutkimusdatan l\u00f6yt\u00e4mist\u00e4, suodattamista ja hy\u00f6dynt\u00e4mist\u00e4. Sen ansiosta tutkijat p\u00e4\u00e4sev\u00e4t k\u00e4siksi tarvitsemaansa dataan ilman, ett\u00e4 heid\u00e4n t\u00e4ytyy kamppailla teknisen infrastruktuurin kanssa ennen varsinaisen tutkimusty\u00f6n aloittamista.<\/p>\n<p>Yksityisyyden suojaa, tietoturvaa ja datansa tutkimusk\u00e4ytt\u00f6\u00f6n luovuttaneiden ihmisten kunnioittamista korostava Neuromine toimii Azure-alustalla. Sen avulla tutkijat voivat hakea ja suodattaa aineistosta tarvitsemiaan osia, valita aineistosta haluamiaan kohortteja ja siirt\u00e4\u00e4 dataa omaan tutkimusymp\u00e4rist\u00f6\u00f6ns\u00e4. Selke\u00e4t yhteydet biologisiin n\u00e4ytteisiin ja solulinjoihin auttavat tutkimusryhmi\u00e4 etenem\u00e4\u00e4n l\u00f6yd\u00f6ksist\u00e4 validointiin sen sijaan, ett\u00e4 ty\u00f6 pys\u00e4htyisi tilanteeseen: \u201dMielenkiintoinen tulos, mutta mit\u00e4 seuraavaksi?\u201d Hallinta- ja k\u00e4ytt\u00f6oikeusk\u00e4yt\u00e4nn\u00f6t on suunniteltu siten, ett\u00e4 portaali pysyy laajasti tutkijoiden hy\u00f6dynnett\u00e4viss\u00e4 ilman, ett\u00e4 ne tarpeettomasti hidastavat tutkimusty\u00f6t\u00e4.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb400cf\"\n    class=\"spacer spacer-9 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecb55699\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb4093b\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n\n<div\n    id=\"block_6a7a9ecb403a6\"\n    class=\"spacer spacer-11 spacer-mobile-0 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb40575\"\n    class=\"rich-text transition--in-up \">\n    <p class=\"--h4\">72:sta kahteen viikkoon<\/p>\n<p class=\"unformatted\">Aiemmin tutkijoilta saattoi kulua 12\u201318 kuukautta ennen kuin he saivat analysoitavan aineiston k\u00e4ytt\u00f6\u00f6ns\u00e4. Neurominen avulla tutkijat voivat saada tutkimushypoteesinsa tueksi tarvittavan datan ja siihen liittyv\u00e4t biologiset n\u00e4ytteet k\u00e4ytt\u00f6\u00f6ns\u00e4 noin kahdessa viikossa.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb407a4\"\n    class=\"spacer spacer-0 spacer-mobile-6 spacer--mobile-only\">\n<\/div>\n\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb5559c\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_b151d8005588396a507ab77eeba6daad\"\n    class=\"media-block transition--media ticss-f39380ac media-block--small\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs.jpg 1920w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs-256x144.jpg 256w, 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5.30964L4.06083 5.30323L3.35373 4.59612C3.15847 4.40086 3.15847 4.08427 3.35373 3.88901L6.88926 0.353478Z\" fill=\"currentColor\"\/><\/svg>        <svg class=\"svg-icon svg-icon--sm\" width=\"14\" height=\"14\" aria-hidden=\"true\"  role=\"img\" focusable=\"false\" viewBox=\"0 0 20 20\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M6.88926 0.353478C7.08452 0.158216 7.40111 0.158216 7.59637 0.353478L8.30347 1.06058C8.49874 1.25585 8.49874 1.57243 8.30347 1.76769L7.07124 2.99992H10.0002C14.4185 2.99992 18.0002 6.58165 18.0002 10.9999C18.0002 15.4182 14.4185 18.9999 10.0002 18.9999C5.74985 18.9999 2.27369 15.6853 2.01555 11.5C1.99855 11.2244 2.22403 10.9999 2.50017 10.9999H3.50017C3.77632 10.9999 3.998 11.2246 4.0207 11.4998C4.2747 14.5796 6.85479 16.9999 10.0002 16.9999C13.3139 16.9999 16.0002 14.3136 16.0002 10.9999C16.0002 7.68622 13.3139 4.99992 10.0002 4.99992H6.58608L8.30378 6.71763C8.49904 6.91289 8.49904 7.22947 8.30378 7.42473L7.59667 8.13184C7.40141 8.3271 7.08483 8.3271 6.88956 8.13184L4.06736 5.30964L4.06083 5.30323L3.35373 4.59612C3.15847 4.40086 3.15847 4.08427 3.35373 3.88901L6.88926 0.353478Z\" fill=\"currentColor\"\/><\/svg>    <\/span>\n    <span class=\"sr-text js-button-label\">\n        pause    <\/span>\n<\/button>\n    <\/div>    \n<div class=\"media-caption\">\n            <div class=\"media-caption__caption\">ALS-potilaista per\u00e4isin olevia el\u00e4vi\u00e4 hermosoluja<\/div>\n        <\/div>\n<\/div>\n<\/div>\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb5594c\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecb565b2\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb55d35\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a7a9ecb55c46\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb564bc\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_6a7a9ecb55ef7\"\n    class=\"rich-text transition--in-up \">\n    <p>Neuromine on mahdollistanut yli 520 tutkimushanketta \u2013 aina lukioymp\u00e4rist\u00f6st\u00e4 johtaviin tutkimuslaitoksiin asti. Yli 1 100 Answer ALS -osallistujan data on nyt yhdenmukaistettu ja saatavilla Neurominessa yhdess\u00e4 ALS Therapy Development Instituten ALS Research Collaborative (ARC) -aineiston kanssa. N\u00e4in tutkijat voivat tarkastella yhdess\u00e4 paikassa yli 2 500 ALS-potilaan tietoja. Answer ALS arvioi, ett\u00e4 malli voi nopeuttaa tutkimusta jopa 65 prosenttia seuraavien vuosien aikana. Ensimm\u00e4ist\u00e4 kertaa tutkijat voivat analysoida ALS:\u00e4\u00e4 niin laajassa mittakaavassa, ett\u00e4 aineistosta voidaan l\u00f6yt\u00e4\u00e4 yhteyksi\u00e4, joita ei aiemmin ollut mahdollista havaita.<\/p>\n<p>Koneoppimismenetelmien avulla on l\u00f6ydetty aiemmin n\u00e4kym\u00e4tt\u00f6miin j\u00e4\u00e4neit\u00e4 geneettisi\u00e4 yhteyksi\u00e4 \u2013 muun muassa lupaava geeniryhm\u00e4, nukleoporiinit, joka s\u00e4\u00e4telee aineiden kulkua solun tumaan ja sielt\u00e4 ulos. Alustavat havainnot viittaavat siihen, ett\u00e4 n\u00e4iden geenien mutaatioiden yhdistelm\u00e4t saattavat osaltaan selitt\u00e4\u00e4, miksi joidenkin ALS-potilaiden sairaus etenee nopeasti, kun taas toiset el\u00e4v\u00e4t vuosia. Tutkimusryhm\u00e4t voivat nyt validoida n\u00e4it\u00e4 havaintoja muuntamalla potilaiden verisoluja hermosoluiksi ja seuraamalla robottimikroskooppien sek\u00e4 biosensoreiden avulla ALS:n etenemist\u00e4 solujen sis\u00e4ll\u00e4 reaaliajassa.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb56153\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb56343\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n<div id=\"block_6a7a9ecb7518b\" class=\"row row--space-between column__container mobile-column-gap-6 column--layout-33-33-33\">\n    \n<div id=\"block-column_6a7a9ecb60bac\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_4613e861792e61cbb0fd176b78985a46\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg 881w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-480x479.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-768x767.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg\"\n                                    width=\"881\"\n            height=\"880\"\n                        class=\"ratio--1-1\"\n            alt=\"Vaaleahiuksinen keski-ik\u00e4inen nainen, jolla on mustasankaiset silm\u00e4lasit ja vaaleanruskea takki, katsoo mietteli\u00e4\u00e4n\u00e4 sivulle.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a7a9ecb605ab\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_2cc06155163d707ae0dee5253ba17464\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__vasen pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Kaikki, jotka osallistuivat, tiesiv\u00e4t, etteiv\u00e4t he ehk\u00e4 olisi paikalla n\u00e4kem\u00e4ss\u00e4 tuloksia. Heid\u00e4n sitoutumisensa oli poikkeuksellista.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Clare Durrett<\/div>\n                                                    <div class=\"attribution-description\">Toimitusjohtaja, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb6aef7\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_c271999a37faed112b035c86b673de34\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg 1192w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-480x480.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-768x767.jpg 768w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-1024x1023.jpg 1024w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg\"\n                                    width=\"1192\"\n            height=\"1191\"\n                        class=\"ratio--1-1\"\n            alt=\"Keski-ik\u00e4inen nainen, jolla on vaaleat hiukset ja silm\u00e4lasit sek\u00e4 musta pusero, nykyaikaisessa toimistossa, jossa on tietokoneita ja kehystetty\u00e4 taidetta.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a7a9ecb6a8f4\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_091d1797ec4cbb16502bdb69838a211d\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__vasen pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Koska Neuromine tarjoaa tutkijoille nopean ja maksuttoman p\u00e4\u00e4syn dataan kaikkialla maailmassa, se voi nopeuttaa tutkimuksen etenemist\u00e4 kuukausilla tai jopa vuosilla.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Terri Thompson, tohtori<\/div>\n                                                    <div class=\"attribution-description\">Tiedonhankintap\u00e4\u00e4llikk\u00f6 ja ohjelmap\u00e4\u00e4llikk\u00f6, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb75063\" class=\"column\">\n    \n\n<div\n    id=\"block_0ff74bf4d14c16f2c2dd99a4cdce6658\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg 772w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-480x481.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-768x769.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg\"\n                                    width=\"772\"\n            height=\"773\"\n                        class=\"ratio--1-1\"\n            alt=\"Valkoiseen kuviolliseen puseroon pukeutunut ruskeahiuksinen nainen seisoo tutkimuslaboratoriossa ja h\u00e4nen takanaan olevilla hyllyill\u00e4 n\u00e4kyy tarvikkeita.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a7a9ecb74a40\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_1f1f58f9cfa62f701caebb001403b93f\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__vasen pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Olen todella innostunut viimeaikaisista tuloksista, joissa olemme pystyneet Answer ALS:n datan avulla erottamaan ALS-potilailta per\u00e4isin olevat solut muista soluista.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Julia Kaye, tohtori<\/div>\n                                                    <div class=\"attribution-description\">Tutkija, Gladstone Institutes<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb7540c\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a7a9ecb76c74\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a7a9ecb7581b\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a7a9ecb7571b\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a7a9ecb76b74\" class=\"column column-vertical-align--yl\u00e4osa\">\n    \n\n<div\n    id=\"block_6a7a9ecb75a33\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n\n<div\n    id=\"block_6a7a9ecb75c30\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Avoin data, todellista edistyst\u00e4<\/h3>\n<p>Harvinaisten sairauksien tutkimuksessa on muotoutumassa uusi toimintamalli, jossa avoin data, kehittyneet laskentamenetelm\u00e4t ja yhteis\u00f6n voimin syntyv\u00e4t innovaatiot nopeuttavat tutkimuksen etenemist\u00e4 hypoteeseista uusiin l\u00f6yd\u00f6ksiin. ALS:\u00e4\u00e4 sairastaville ihmisille, joilla aikaa ei usein ole hukattavaksi, t\u00e4m\u00e4 antaa toivoa aiempaa suoraviivaisemmasta tiest\u00e4 kohti parannuskeinoa.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb75e5e\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--kaikki-only\">\n<\/div>\n\n\n\n<nav\n\tclass=\"story-tags ticss-db52dfad\"\n\taria-labelledby=\"block_080897d6ad080d30b0f1c8d0d24d05be-topics-label\"\n\tid=\"block_080897d6ad080d30b0f1c8d0d24d05be\">\n\t<div class=\"story-tags__inner\">\n\t\t<span class=\"story-tags__label\" id=\"block_080897d6ad080d30b0f1c8d0d24d05be-topics-label\">Topics:<\/span>\n\t\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/fi\/tag\/ai\/\">AI<\/a>\n\t\t\t\t\t\t\t\t<span class=\"story-tags__pair\">\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/fi\/tag\/data\/\">Data<\/a>\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/fi\/tag\/terveydenhuolto\/\">Terveydenhuolto<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n<\/nav>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb76eec\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--kaikki-only\">\n<\/div>\n\n\n\n\n<div id=\"block_73d16780c515d8a42db9fe9f778173bf\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__keskitetty pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\"><span data-teams=\"true\">Se muuttaa yksitt\u00e4isten ihmisten kokemukset yhteiseksi voimavaraksi. Avoin data vauhdittaa tutkimuksen tekemist\u00e4.<\/span><\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Perustaja ja hallituksen j\u00e4sen, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a7a9ecb775dd\"\n    class=\"spacer spacer-9 spacer-mobile-6 spacer--kaikki-only\">\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Ihmiset, joilla on ALS, jakavat tietojaan Neuromine-dataportaalin kautta \u2013 n\u00e4in tutkijat edistyv\u00e4t nopeammin, yhdess\u00e4<\/p>\n","protected":false},"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":true},"tags":[388,242,411],"class_list":["post-42037","stories","type-stories","status-publish","hentry","tag-ai","tag-data","tag-terveydenhuolto","collections-thriving-communities","entry","page-content"],"acf":{"featured_media_featured_scrim_color":"#000000","featured_media_card_ratio":"1-1","featured_media_card_image":30516,"featured_media_card_video":"","featured_media_card_video_button_desc":"","featured_media_featured_image":30543,"featured_media_featured_video":"","featured_media_featured_video_button_desc":"","featured_media_featured_headline":"","featured_media_featured_excerpt":"","featured_media_search_image":29473,"featured_media_search_card_image":30570,"featured_media_search_card_video":"","featured_media_search_card_video_button_desc":"","disable_segoe_serif":false,"settings":{"external_url":[""],"collections":6}},"_links":{"self":[{"href":"https:\/\/unlocked.microsoft.com\/fi\/wp-json\/wp\/v2\/stories\/42037","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unlocked.microsoft.com\/fi\/wp-json\/wp\/v2\/stories"}],"about":[{"href":"https:\/\/unlocked.microsoft.com\/fi\/wp-json\/wp\/v2\/types\/stories"}],"wp:attachment":[{"href":"https:\/\/unlocked.microsoft.com\/fi\/wp-json\/wp\/v2\/media?parent=42037"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unlocked.microsoft.com\/fi\/wp-json\/wp\/v2\/tags?post=42037"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}