{"id":42035,"date":"2026-03-26T10:09:33","date_gmt":"2026-03-26T17:09:33","guid":{"rendered":"https:\/\/unlocked.microsoft.com\/?post_type=stories&#038;p=42035"},"modified":"2026-07-10T10:13:42","modified_gmt":"2026-07-10T17:13:42","slug":"nar-data-bevaeger-sig-hurtigere-gor-habet-det-ogsa","status":"publish","type":"stories","link":"https:\/\/unlocked.microsoft.com\/da\/nar-data-bevaeger-sig-hurtigere-gor-habet-det-ogsa\/","title":{"rendered":"N\u00e5r data bev\u00e6ger sig hurtigere, g\u00f8r h\u00e5bet det ogs\u00e5"},"content":{"rendered":"\n<div\n    id=\"block_8f8d63eb17cadf7ce63a3ce2545765c3\"\n    class=\"split-feature split-feature--inset-image split-feature--right split-feature--bottom js-split-feature js-parallax \">\n    <div class=\"split-feature__content js-split-feature-content\">\n        <div class=\"transition--in-up\">\n            <div class=\"split-feature__header-wrapper\">\n                                <h1 class=\"split-feature__header split-feature__header__size-h2\">\n                                    N\u00e5r data bev\u00e6ger sig hurtigere, g\u00f8r h\u00e5bet det ogs\u00e5                                <\/h1>\n                                <\/div>\n                <div class=\"split-feature__excerpt-wrapper\">\n            <div class=\"split-feature__excerpt\">Mennesker, der lever med ALS, v\u00e6lger at dele deres data via Neuromine, s\u00e5 forskerne sammen kan g\u00f8re hurtigere fremskridt<\/div>                                <\/div>\n    <\/div>\n<\/div>\n<div class=\"split-feature__media transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01.jpg 1356w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01-80x80.jpg 80w, 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viewBox=\"0 0 24 24\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M7.35547 9.06274H3.41797V22.0002H7.35547V9.06274Z\" fill=\"currentColor\"\/><path d=\"M16.9197 9.06274C14.668 9.06274 14.0436 9.80074 13.543 10.7502V9.06274H9.60547V22.0002H13.543V14.6877C13.543 13.5627 13.543 12.4377 15.5117 12.4377C17.4805 12.4377 17.4805 13.5627 17.4805 14.6877V22.0002H21.418V14.6877C21.418 11.3127 20.8555 9.06274 16.9197 9.06274Z\" fill=\"currentColor\"\/><path d=\"M5.38672 7.9375C6.47403 7.9375 7.35547 7.05606 7.35547 5.96875C7.35547 4.88144 6.47403 4 5.38672 4C4.29941 4 3.41797 4.88144 3.41797 5.96875C3.41797 7.05606 4.29941 7.9375 5.38672 7.9375Z\" fill=\"currentColor\"\/><title id=\"icon-6a8b895816392\">LinkedIn<\/title><\/svg>    <\/a>\n\n        \n    <\/div>\n\n    \n    <div\n        class=\"sr-text js-social-status\"\n        role=\"status\"\n    ><\/div>\n<\/section>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89581649d\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_3ca359acba30b202f3f09a189f9986fc\"\n    class=\"publication-date \">\n    <p class=\"publication-date__text\">marts 26, 2026<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b895816b17\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b895816d1c\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Det ansl\u00e5s, at 450.000 mennesker verden over lever med ALS.<\/h4>\n<p class=\"--h5\">Der findes ingen kur.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b89581a099\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a8b8958177eb\"\n    class=\"rich-text transition--in-up \">\n    <p>For mennesker, der lever med ALS, t\u00e6ller hvert eneste sekund. Efter diagnosen har mange kun 2-5 \u00e5r tilbage sammen med deres venner og k\u00e6re. Familierne m\u00e5 l\u00e6re et nyt ordforr\u00e5d \u2013 sondeern\u00e6ring, hj\u00e6lpemidler, tab af stemmen \u2013 mens et andet, mere stille ur begynder at tikke i forskningslaboratorierne. De lange tidshorisonter i forskningen stemmer sj\u00e6ldent overens med den presserende situation i klinikken \u2013 og det er netop denne uoverensstemmelse, som <a href=\"https:\/\/www.answerals.org\/\" target=\"_blank\" rel=\"noopener\">Answer ALS<\/a> har sat sig for at \u00e6ndre<\/p>\n<p>Answer ALS tog udgangspunkt i den enkle, men st\u00e6rke tanke, at mennesker med ALS er mere end blot patienter i systemet. De kan bidrage aktivt til fremskridt. N\u00e5r folk v\u00e6lger at dele deres data \u2013 sikkert, ansvarligt og til gavn for det f\u00e6lles bedste \u2013 kan det \u00e5bne op for en helt ny fremtid inden for forskningen.<\/p>\n<p>Answer ALS samler forskere, personer med ALS og talspersoner i et \u00e5bent, samarbejdsbaseret initiativ, der har til form\u00e5l at fremskynde udviklingen af behandlinger og helbredende midler. M\u00e5let er at give sikker adgang til detaljerede kliniske og biologiske data samt relaterede biologiske pr\u00f8ver, s\u00e5 forskerne kan identificere biologiske undergrupper, biomark\u00f8rer og behandlingsm\u00e6ssige m\u00e5l. Men historisk set har det ikke v\u00e6ret nok blot at have dataene til r\u00e5dighed; de skulle ogs\u00e5 deles p\u00e5 en m\u00e5de, der rent faktisk hjalp forskerne med at g\u00f8re hurtigere fremskridt.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89581ae48\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_8caf9f4b7abbd385f73518055ba04fc6\" class=\"video-player\">\n    <div id=\"videoplayer-1\" class=\"video-player__wrapper js-video-player theme-overlay  has-overlay-image\" aria-label=\"Se \u201cHvert sekund t\u00e6ller\u201d\">\n        <div\n            id=\"video-player-overlay-b654ffb1-6d85-406c-9324-518dff1bdb0e\"\n            class=\"video-player__overlay js-video-player-overlay\"\n            data-label-video-title=\"\u201cHvert sekund t\u00e6ller\u201d\"\n            data-label-desktop=\"A man using assistive breathing equipment holds a young girl in a white shirt as they both look upward together indoors.\"\n    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mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b89586f9ad\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a8b89586f8b4\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b89586fddb\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a8b89586fb4a\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Udfordringen der \u00e6ndrede tempoet<\/h3>\n<p>Answer ALS r\u00e5dede over vitale data: et omfattende multi-omisk datas\u00e6t om ALS p\u00e5 tv\u00e6rs af deltagerne, herunder helgenomsekventering, detaljerede longitudinale kliniske data og neurale modeller baseret p\u00e5 patientafledte stamceller. Det f\u00f8rste fors\u00f8g p\u00e5 at dele disse data \u2013 via en akademisk institution \u2013 var imidlertid aldrig t\u00e6nkt til at kunne skaleres.<\/p>\n<p>I praksis fungerede det mere som et simpelt filarkiv eller et sted, hvor alt var samlet \u2013 men ikke p\u00e5 en m\u00e5de, der var nem at finde rundt i. Selvom forskerne teknisk set kunne udv\u00e6lge bestemte patientgrupper, kr\u00e6vede det kendskab til kommandolinjen og et h\u00f8jt niveau af it-ekspertise. For mange grundforskere og klinikere var selv enkle sp\u00f8rgsm\u00e5l som \u2013 &#8220;Kan jeg isolere data om kvinder med ALS?&#8221; \u2013 sv\u00e6re at besvare uden betydelig teknisk support. Dette begr\u00e6nsede platformens evne til at muligg\u00f8re effektiv, selvbetjent s\u00f8gning.<\/p>\n<p>V\u00e6rre endnu var det, at arbejdsprocessen i al stilhed begr\u00e6nsede, hvem der kunne deltage. Hvis man ikke var fortrolig med kommandolinjen eller ikke havde solide f\u00e6rdigheder inden for databehandling og datalagring, var dette \u201c\u00e5bne\u201d datas\u00e6t ikke rigtig \u00e5bent. Og fordi platformen ikke var udviklet til at v\u00e6re en sikker, offentligt tilg\u00e6ngelig ressource \u2013 hvilket netop er kernen i Answer ALS\u2019 mission \u2013 var det sv\u00e6rt at gennemf\u00f8re global deling i stor skala p\u00e5 en ansvarlig m\u00e5de.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b895870157\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8b895882125\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b8958818b5\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_493351737e08fc6685b854a3ade2168c\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-video js-media-video\">\n            <div\n            class=\"media-video__wrapper\"\n                        role=\"presentation\"\n                    >\n\n                    <video\n                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\n\n<div\n    id=\"block_6a8b895881aea\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Hurtigere handling, invester mere, samarbejd uden kompromiser<\/h4>\n<p>For Steve Gleason er det en retningslinje.<\/p>\n<p>Den tidligere forsvarsspiller for New Orleans Saints har v\u00e6ret med til at vise, hvad der er muligt for mennesker, der lever med ALS. Steve fik diagnosen i 2011 og har brugt sine egne erfaringer som afs\u00e6t til at skabe forandring \u2013 han k\u00e6mper for bedre st\u00f8tte, bedre teknologi og hurtigere fremskridt inden for forskningen.<\/p>\n<blockquote>\n<h6 class=\"--h6\">\u201cJeg siger, at jeg fik diagnosen ALS, s\u00e5 millioner af mennesker i fremtiden ikke f\u00e5r diagnosen,\u201d siger Steve Gleason, stifter og bestyrelsesmedlem i Answer ALS.<\/h6>\n<\/blockquote>\n<p>Mange NFL-fans husker ham for et ikonisk \u00f8jeblik \u2013 en blokeret punt i en kamp i 2006. I 2012 blev der rejst en bronzestatue uden for Superdome, der viser ham midt i blokeringen. I dag hj\u00e6lper han med at nedbryde de barrierer, der hindrer adgang og fremskridt for andre med ALS.<\/p>\n<p>Som en mange\u00e5rig fortaler for ALS har Steve insisteret p\u00e5, at mennesker med ALS ikke skal vente p\u00e5 en kur for at kunne leve et meningsfuldt liv. Gennem en anden nonprofitorganisation, <a href=\"https:\/\/teamgleason.org\/\" target=\"_blank\" rel=\"noopener\">Team Gleason<\/a>, har han hjulpet tusindvis af mennesker med ALS og andre neuromuskul\u00e6re lidelser med at f\u00e5 adgang til praktiske v\u00e6rkt\u00f8jer og tjenester, der beskytter deres uafh\u00e6ngighed lige nu \u2013 is\u00e6r inden for kommunikation og mobilitet. Med fokus p\u00e5 at forbinde mennesker med hj\u00e6lpemidler og udstyr \u00f8ger nonprofitorganisationen bevidstheden om og fremskynder indsatsen for at udrydde ALS.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89588248b\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_5cb4191d913fdd8bcf2430036bbf958e\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__center pullquote__H4\">\n        <blockquote class=\"quote quote__H4 quote--show-marks\">Teknologien giver mig det tilbage, som ALS har taget fra mig. Min stemme, min bev\u00e6gelighed og min evne til at skabe kontakt og udtrykke mig.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Grundl\u00e6gger og bestyrelsesmedlem, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89588450f\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8b895884e5c\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b8958848ff\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8b89588480e\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b895884ca5\" class=\"column\">\n    \n\n<div\n    id=\"block_6a8b895884abe\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Udviklet til forskere og designet med henblik p\u00e5 hastighed<\/h3>\n<p>Answer ALS udm\u00f8ntede Steve Gleasons hastende appel i Neuromine \u2013 et f\u00e6lles forskningscenter, der er udviklet til at g\u00f8re det nemmere at finde, filtrere og anvende forskningsdata om ALS. Det giver forskerne bedre adgang til dataene, uden at de f\u00f8rst skal k\u00e6mpe med infrastrukturen, f\u00f8r de kan tage kampen op mod sygdommen.<\/p>\n<p>Neuromine er bygget op omkring privatlivsbeskyttelse, sikkerhed og respekt for de mennesker, hvis data danner grundlaget for arbejdet, og det k\u00f8rer p\u00e5 Azure. Med dette fundament kan forskere finde relevante udsnit af datas\u00e6ttet ved hj\u00e6lp af s\u00f8gning og filtrering, udtr\u00e6kke m\u00e5lrettede patientgrupper og overf\u00f8re data til deres eget arbejdsmilj\u00f8. En klar sammenkobling med biologiske pr\u00f8ver og cellelinjeressourcer hj\u00e6lper teams med at g\u00e5 fra opdagelse til validering, i stedet for at sidde fast i \u201dinteressant resultat, uklart n\u00e6ste skridt\u201d. Styring og adgang er struktureret, s\u00e5 portalen forbliver bredt anvendelig \u2013 uden at bremse legitim forskning.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958850f8\"\n    class=\"spacer spacer-9 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8b89589da01\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b895885986\" class=\"column column-vertical-align--top\">\n    \n\n\n<div\n    id=\"block_6a8b8958853e0\"\n    class=\"spacer spacer-11 spacer-mobile-0 spacer--desktop-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958855d9\"\n    class=\"rich-text transition--in-up \">\n    <p class=\"--h4\">Fra 72 til to uger<\/p>\n<p class=\"unformatted\">Tidligere kunne det tage 12-18 m\u00e5neder at f\u00e5 adgang til et datas\u00e6t, der kunne analyseres. Med Neuromine kan forskerne g\u00e5 fra hypotese til adgang til data \u2013 og til tilh\u00f8rende biologiske pr\u00f8ver \u2013 p\u00e5 cirka to uger.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958857ea\"\n    class=\"spacer spacer-0 spacer-mobile-6 spacer--mobile-only\">\n<\/div>\n\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b89589d8e6\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_af940e01e972e8d9c102495a58ad901c\"\n    class=\"media-block transition--media ticss-f39380ac media-block--small\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs.jpg 1920w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs-256x144.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs-480x270.jpg 480w, 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5.30323L3.35373 4.59612C3.15847 4.40086 3.15847 4.08427 3.35373 3.88901L6.88926 0.353478Z\" fill=\"currentColor\"\/><\/svg>    <\/span>\n    <span class=\"sr-text js-button-label\">\n        pause    <\/span>\n<\/button>\n    <\/div>    \n<div class=\"media-caption\">\n            <div class=\"media-caption__caption\">Levende neuroner med ALS<\/div>\n        <\/div>\n<\/div>\n<\/div>\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89589dcec\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8b89589e96f\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b89589e0d8\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8b89589dfe3\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b89589e88b\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a8b89589e29a\"\n    class=\"rich-text transition--in-up \">\n    <p>Neuromine har gjort det muligt at gennemf\u00f8re over 520 forskningsprojekter \u2013 hos alt lige fra gymnasieklasser til f\u00f8rende forskningsinstitutioner. Data fra over 1.100 deltagere i Answer ALS-projektet er nu samordnet og tilg\u00e6ngelige i Neuromine sammen med ALS Therapy Development Institutes ALS Research Collaborative (ARC), hvilket giver forskerne mulighed for at unders\u00f8ge mere end 2.500 ALS-patientprofiler p\u00e5 \u00e9t sted. Answer ALS vurderer, at denne model kan fremskynde forskningstidsplanerne med op til 65 % i l\u00f8bet af de n\u00e6ste par \u00e5r. For f\u00f8rste gang kan forskere analysere ALS i et omfang og en dybde, der afsl\u00f8rer m\u00f8nstre, som ingen menneskelig hjerne alene kunne opdage.<\/p>\n<p>Maskinl\u00e6ringsmetoder afsl\u00f8rer hidtil usynlige genetiske sammenh\u00e6nge \u2013 herunder en lovende gruppe af gener kaldet nukleoporiner, som regulerer transporten ind og ud af cellekernen. De f\u00f8rste tegn tyder p\u00e5, at kombinationer af mutationer i disse gener kan v\u00e6re med til at forklare, hvorfor nogle menneskers tilstand forv\u00e6rres hurtigt, mens andre overlever i mange \u00e5r. Nu kan forskerteams bekr\u00e6fte disse indsigter ved at omdanne patienters blodceller til neuroner og derefter bruge robotmikroskoper og biosensorer til at f\u00f8lge ALS\u2019 udvikling inde i cellen i realtid.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89589e537\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b89589e727\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n<div id=\"block_6a8b8958d0f40\" class=\"row row--space-between column__container mobile-column-gap-6 column--layout-33-33-33\">\n    \n<div id=\"block-column_6a8b8958b0054\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_b0fa6ed6b3dfa0d3ffe6eafc89032f90\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg 881w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-480x479.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-768x767.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg\"\n                                    width=\"881\"\n            height=\"880\"\n                        class=\"ratio--1-1\"\n            alt=\"Midaldrende kvinde med blondt h\u00e5r og briller med sort stel if\u00f8rt en beige jakke, der ser tankefuldt til siden.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8b8958af9f5\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_ed209fcec3f64915b46a5d8188d6799d\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Alle, der deltog, vidste, at de m\u00e5ske ikke ville v\u00e6re her til at se resultaterne. Deres engagement var simpelthen enest\u00e5ende.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Clare Durrett<\/div>\n                                                    <div class=\"attribution-description\">Managing Director, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b8958c1510\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_d1182f4d0a85a6811aad5f0e424ea30a\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg 1192w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-480x480.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-768x767.jpg 768w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-1024x1023.jpg 1024w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg\"\n                                    width=\"1192\"\n            height=\"1191\"\n                        class=\"ratio--1-1\"\n            alt=\"Midaldrende kvinde med blondt h\u00e5r og briller if\u00f8rt en sort skjorte i et moderne kontor med computere og indrammede kunstv\u00e6rker.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8b8958c0e79\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_27f4cb1f01d9c5f3845df196d52067fa\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Da Neuromine kan levere data hurtigt og gratis over hele verden, vil det reducere udviklingstiden med m\u00e5neder, hvis ikke \u00e5r.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Terri Thompson, PhD<\/div>\n                                                    <div class=\"attribution-description\">Director, Data Management &#038; Program Manager Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b8958d0e09\" class=\"column\">\n    \n\n<div\n    id=\"block_6107511def80d37e04aa8377a41762d7\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg 772w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-480x481.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-768x769.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg\"\n                                    width=\"772\"\n            height=\"773\"\n                        class=\"ratio--1-1\"\n            alt=\"En kvinde med b\u00f8lget brunt h\u00e5r if\u00f8rt en hvid m\u00f8nstret skjorte, der st\u00e5r i et forskningslaboratorium med udstyr p\u00e5 hylderne bag sig.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8b8958d0774\"\n    class=\"spacer spacer-2 spacer-mobile-2\">\n<\/div>\n\n\n\n\n<div id=\"block_8af6d2f5c68bba077f1392100cb58447\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__left pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Jeg er virkelig begejstret for de seneste resultater, hvor vi kan identificere celler fra ALS\u2011patienter ved hj\u00e6lp af Answer ALS\u2011data<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Julia Kaye, PhD<\/div>\n                                                    <div class=\"attribution-description\">Research Investigator, Gladstone Institutes<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958d11bb\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8b8958d296f\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8b8958d1586\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8b8958d1495\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8b8958d2863\" class=\"column column-vertical-align--top\">\n    \n\n<div\n    id=\"block_6a8b8958d1774\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n\n<div\n    id=\"block_6a8b8958d195b\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">\u00c5bne data, et reelt fremskridt<\/h3>\n<p>Der tegner sig en ny model for forskning i sj\u00e6ldne sygdomme. En model, der g\u00e5r ind for \u00e5bne data, avanceret databehandling og samfundsdrevet innovation, der i kombination kan forkorte vejen fra hypotese til indsigt. For mennesker, der lever med ALS \u2013 og som ofte ikke har tid til at vente \u2013 er denne fremskyndelse en bedre mulighed for at finde en kur.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958d1b8b\"\n    class=\"spacer spacer-4 spacer-mobile-2\">\n<\/div>\n\n\n\n<nav\n\tclass=\"story-tags ticss-db52dfad\"\n\taria-labelledby=\"block_19cb0b80f049fb66810e121add7eede5-topics-label\"\n\tid=\"block_19cb0b80f049fb66810e121add7eede5\">\n\t<div class=\"story-tags__inner\">\n\t\t<span class=\"story-tags__label\" id=\"block_19cb0b80f049fb66810e121add7eede5-topics-label\">Topics:<\/span>\n\t\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/da\/tag\/data\/\">Data<\/a>\n\t\t\t\t\t\t\t\t<span class=\"story-tags__pair\">\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/da\/tag\/kunstig-intelligens\/\">Kunstig intelligens<\/a>\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/da\/tag\/sundhedssektoren\/\">Sundhedssektoren<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n<\/nav>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958d2bd6\"\n    class=\"spacer spacer-6 spacer-mobile-4\">\n<\/div>\n\n\n\n\n<div id=\"block_95f4df503aec12e40a87bc4fcdbcbf8d\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__center pullquote__H4\">\n        <blockquote class=\"quote quote__H4 quote--show-marks\"><span data-teams=\"true\">Det vender individuelle historier til kollektiv styrke. \u00c5bne data fremskynder det hele.<\/span><\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Grundl\u00e6gger og bestyrelsesmedlem, Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8b8958d32a5\"\n    class=\"spacer spacer-9 spacer-mobile-6\">\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Mennesker, der lever med ALS, v\u00e6lger at dele deres data via Neuromine, s\u00e5 forskerne hurtigere kan g\u00f8re fremskridt sammen<\/p>\n","protected":false},"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":true},"tags":[254,380,409],"class_list":["post-42035","stories","type-stories","status-publish","hentry","tag-data","tag-kunstig-intelligens","tag-sundhedssektoren","collections-thriving-communities","entry","page-content"],"acf":{"featured_media_featured_scrim_color":"#000000","featured_media_card_ratio":"1-1","featured_media_card_image":30514,"featured_media_card_video":"","featured_media_card_video_button_desc":"","featured_media_featured_image":30541,"featured_media_featured_video":"","featured_media_featured_video_button_desc":"","featured_media_featured_headline":"","featured_media_featured_excerpt":"","featured_media_search_image":29471,"featured_media_search_card_image":30568,"featured_media_search_card_video":"","featured_media_search_card_video_button_desc":"","disable_segoe_serif":false,"settings":{"external_url":[""],"collections":6}},"_links":{"self":[{"href":"https:\/\/unlocked.microsoft.com\/da\/wp-json\/wp\/v2\/stories\/42035","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unlocked.microsoft.com\/da\/wp-json\/wp\/v2\/stories"}],"about":[{"href":"https:\/\/unlocked.microsoft.com\/da\/wp-json\/wp\/v2\/types\/stories"}],"wp:attachment":[{"href":"https:\/\/unlocked.microsoft.com\/da\/wp-json\/wp\/v2\/media?parent=42035"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unlocked.microsoft.com\/da\/wp-json\/wp\/v2\/tags?post=42035"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}