{"id":42034,"date":"2026-03-26T10:09:33","date_gmt":"2026-03-26T17:09:33","guid":{"rendered":"https:\/\/unlocked.microsoft.com\/?post_type=stories&#038;p=42034"},"modified":"2026-07-10T10:13:47","modified_gmt":"2026-07-10T17:13:47","slug":"cim-rychleji-proudi-data-tim-vetsi-je-nadeje","status":"publish","type":"stories","link":"https:\/\/unlocked.microsoft.com\/cs\/cim-rychleji-proudi-data-tim-vetsi-je-nadeje\/","title":{"rendered":"\u010c\u00edm rychleji proud\u00ed data, t\u00edm v\u011bt\u0161\u00ed je nad\u011bje"},"content":{"rendered":"\n<div\n    id=\"block_31b6bd0c94ee9a9920140696be1763f8\"\n    class=\"split-feature split-feature--inset-image split-feature--left split-feature--bottom js-split-feature js-parallax \">\n    <div class=\"split-feature__content js-split-feature-content\">\n        <div class=\"transition--in-up\">\n            <div class=\"split-feature__header-wrapper\">\n                                <h1 class=\"split-feature__header split-feature__header__size-h2\">\n                                    \u010c\u00edm rychleji proud\u00ed data, t\u00edm v\u011bt\u0161\u00ed je nad\u011bje                                <\/h1>\n                                <\/div>\n                <div class=\"split-feature__excerpt-wrapper\">\n            <div class=\"split-feature__excerpt\">Lid\u00e9 s\u00a0onemocn\u011bn\u00edm ALS se rozhoduj\u00ed sd\u00edlet sv\u00e1 data prost\u0159ednictv\u00edm port\u00e1lu Neuromine, aby mohli v\u00fdzkumn\u00edci postupovat rychleji a\u00a0spole\u010dn\u011b.<\/div>                                <\/div>\n    <\/div>\n<\/div>\n<div class=\"split-feature__media transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-hero-01.jpg 1356w, 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height=\"24\" aria-hidden=\"true\" aria-labelledby=\"icon-6a8bf7377dcc3\" role=\"img\" focusable=\"false\" viewBox=\"0 0 24 24\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M7.35547 9.06274H3.41797V22.0002H7.35547V9.06274Z\" fill=\"currentColor\"\/><path d=\"M16.9197 9.06274C14.668 9.06274 14.0436 9.80074 13.543 10.7502V9.06274H9.60547V22.0002H13.543V14.6877C13.543 13.5627 13.543 12.4377 15.5117 12.4377C17.4805 12.4377 17.4805 13.5627 17.4805 14.6877V22.0002H21.418V14.6877C21.418 11.3127 20.8555 9.06274 16.9197 9.06274Z\" fill=\"currentColor\"\/><path d=\"M5.38672 7.9375C6.47403 7.9375 7.35547 7.05606 7.35547 5.96875C7.35547 4.88144 6.47403 4 5.38672 4C4.29941 4 3.41797 4.88144 3.41797 5.96875C3.41797 7.05606 4.29941 7.9375 5.38672 7.9375Z\" fill=\"currentColor\"\/><title id=\"icon-6a8bf7377dcc3\">LinkedIn<\/title><\/svg>    <\/a>\n\n        \n    <\/div>\n\n    \n    <div\n        class=\"sr-text js-social-status\"\n        role=\"status\"\n    ><\/div>\n<\/section>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf7377ddc6\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_645b70a2a21d795f0a91ed66485c9241\"\n    class=\"publication-date \">\n    <p class=\"publication-date__text\">26 b\u0159ezna, 2026<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf7377e5d7\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf7377e7f3\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Odhaduje se, \u017ee s\u00a0ALS \u017eije po cel\u00e9m sv\u011bt\u011b 450\u00a0000\u00a0lid\u00ed.<\/h4>\n<p class=\"--h5\">Neexistuje \u017e\u00e1dn\u00e1 l\u00e9\u010dba.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737826c0\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf7377f58d\"\n    class=\"rich-text transition--in-up \">\n    <p>Pro lidi \u017eij\u00edc\u00ed s\u00a0ALS je d\u016fle\u017eit\u00e1 ka\u017ed\u00e1 sekunda. Po stanoven\u00ed diagn\u00f3zy zb\u00fdv\u00e1 mnoh\u00fdm z\u00a0nich jen 2\u20135\u00a0let, kter\u00e9 mohou str\u00e1vit s\u00a0p\u0159\u00e1teli a\u00a0bl\u00edzk\u00fdmi. Rodiny se mus\u00ed nau\u010dit nov\u00e9 pojmy \u2013 v\u00fd\u017eivov\u00e9 sondy, pom\u016fcky pro pohyb, ztr\u00e1ta hlasu \u2013, zat\u00edmco ve v\u00fdzkumn\u00fdch laborato\u0159\u00edch za\u010d\u00ednaj\u00ed tikat jin\u00e9, ti\u0161\u0161\u00ed hodiny. Dlouh\u00e9 doby v\u00fdzkumu \u010dasto neodpov\u00eddaj\u00ed nal\u00e9havosti situace v\u00a0klinick\u00e9 praxi \u2013 a\u00a0pr\u00e1v\u011b tento nesoulad hodl\u00e1 projekt <a href=\"https:\/\/www.answerals.org\/\" target=\"_blank\" rel=\"noopener\">Answer ALS<\/a> zm\u011bnit.<\/p>\n<p>Projekt Answer ALS vych\u00e1z\u00ed z\u00a0jednoduch\u00e9, ale z\u00e1sadn\u00ed my\u0161lenky, \u017ee lid\u00e9 s\u00a0ALS nejsou pouze pacienti. Mohou se aktivn\u011b pod\u00edlet na pokroku. Pokud se rozhodnou sd\u00edlet sv\u00e1 data \u2013 bezpe\u010dn\u011b, zodpov\u011bdn\u011b a\u00a0pro dobro cel\u00e9 spole\u010dnosti \u2013 mohou pomoci vytvo\u0159it zcela novou budoucnost v\u011bdeck\u00e9ho v\u00fdzkumu.<\/p>\n<p>Projekt Answer ALS spojuje v\u00fdzkumn\u00edky, lidi s\u00a0ALS a\u00a0jejich podporovatele v otev\u0159en\u00e9m spole\u010dn\u00e9m \u00fasil\u00ed urychlit v\u00fdvoj l\u00e9\u010dby a\u00a0nalezen\u00ed \u00fa\u010dinn\u00e9ho l\u00e9ku. Jeho c\u00edlem je poskytovat bezpe\u010dn\u00fd p\u0159\u00edstup k\u00a0podrobn\u00fdm klinick\u00fdm a biologick\u00fdm dat\u016fm i\u00a0souvisej\u00edc\u00edm biologick\u00fdm vzork\u016fm, aby v\u011bdci mohli identifikovat biologick\u00e9 podskupiny pacient\u016f, biomarkery a\u00a0terapeutick\u00e9 c\u00edle. V\u00a0minulosti v\u0161ak platilo, \u017ee m\u00edt data je\u0161t\u011b neznamenalo sd\u00edlet je zp\u016fsobem, kter\u00fd by v\u00fdzkumn\u00edk\u016fm skute\u010dn\u011b pom\u00e1hal postupovat rychleji.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737834b7\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_8c8b885decc80ffcf553a7053c253c83\" class=\"video-player\">\n    <div id=\"videoplayer-1\" class=\"video-player__wrapper js-video-player theme-overlay  has-overlay-image\" aria-label=\"Pod\u00edvejte se na \u201eKa\u017ed\u00e1 sekunda je d\u016fle\u017eit\u00e1\u201c\">\n        <div\n            id=\"video-player-overlay-4a5945eb-1315-4541-95b1-7321c14dd321\"\n            class=\"video-player__overlay js-video-player-overlay\"\n            data-label-video-title=\"\u201eKa\u017ed\u00e1 sekunda je d\u016fle\u017eit\u00e1\u201c\"\n            data-label-desktop=\"A man using assistive breathing 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spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf737cb554\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf737cafcf\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf737caed1\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737cb420\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf737cb1af\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">V\u00fdzva, je\u017e zm\u011bnila dosavadn\u00ed tempo v\u00fdzkumu<\/h3>\n<p>Projekt Answer ALS m\u011bl k\u00a0dispozici cenn\u00fd soubor dat: rozs\u00e1hl\u00fd multiomick\u00fd pohled na ALS zahrnuj\u00edc\u00ed kompletn\u00ed sekvenov\u00e1n\u00ed genomu, podrobn\u00e1 dlouhodob\u011b sledovan\u00e1 klinick\u00e1 data i\u00a0neur\u00e1ln\u00ed modely zalo\u017een\u00e9 na kmenov\u00fdch bu\u0148k\u00e1ch z\u00edskan\u00fdch od pacient\u016f. Prvn\u00ed pokus o\u00a0sd\u00edlen\u00ed t\u011bchto dat prost\u0159ednictv\u00edm akademick\u00e9 instituce v\u0161ak nikdy nebyl navr\u017een pro vyu\u017eit\u00ed v\u00a0takov\u00e9m rozsahu.<\/p>\n<p>V\u00a0praxi to fungovalo sp\u00ed\u0161e jako z\u00e1kladn\u00ed \u00falo\u017ei\u0161t\u011b soubor\u016f nebo m\u00edsto, kde se v\u0161echno nach\u00e1zelo, av\u0161ak navigace v\u00a0n\u011bm nebyla zrovna snadn\u00e1. A\u010dkoli m\u011bli v\u00fdzkumn\u00edci technicky mo\u017enost vybrat konkr\u00e9tn\u00ed skupiny pacient\u016f, vy\u017eadovalo to znalost p\u0159\u00edkazov\u00e9ho \u0159\u00e1dku a\u00a0vysokou \u00farove\u0148 po\u010d\u00edta\u010dov\u00fdch znalost\u00ed. Pro mnoho v\u00fdzkumn\u00fdch pracovn\u00edk\u016f a\u00a0klinick\u00fdch l\u00e9ka\u0159\u016f bylo obt\u00ed\u017en\u00e9 odpov\u011bd\u011bt i\u00a0na jednoduch\u00e9 ot\u00e1zky, jako nap\u0159\u00edklad: \u201eMohu izolovat data o\u00a0\u017een\u00e1ch s\u00a0ALS?\u201c, bez v\u00fdznamn\u00e9 technick\u00e9 podpory. To omezovalo schopnost platformy umo\u017enit efektivn\u00ed, samoobslu\u017en\u00e9 vyhled\u00e1v\u00e1n\u00ed.<\/p>\n<p>Je\u0161t\u011b hor\u0161\u00ed bylo, \u017ee tento pracovn\u00ed postup nen\u00e1padn\u011b omezil okruh t\u011bch, kdo se mohli zapojit. Pokud jste se v\u00a0p\u0159\u00edkazov\u00e9m \u0159\u00e1dku nec\u00edtili jist\u011b nebo jste nem\u011bli dostate\u010dn\u00e9 znalosti v\u00a0oblasti v\u00fdpo\u010detn\u00ed techniky a\u00a0\u00falo\u017ei\u0161\u0165, nebyl tento \u201eotev\u0159en\u00fd\u201c soubor dat ve skute\u010dnosti v\u016fbec otev\u0159en\u00fd. A\u00a0proto\u017ee platforma nebyla navr\u017eena jako bezpe\u010dn\u00fd zdroj ur\u010den\u00fd pro ve\u0159ejnost \u2013 co\u017e je j\u00e1drem posl\u00e1n\u00ed projektu Answer ALS \u2013 bylo obt\u00ed\u017en\u00e9 zajistit odpov\u011bdn\u00e9 sd\u00edlen\u00ed v\u00a0celosv\u011btov\u00e9m m\u011b\u0159\u00edtku.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737cb7cb\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf737d845c\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf737d7ce4\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_cd07b22fd430edc6f962bf47ecd9e6a7\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-video js-media-video\">\n            <div\n            class=\"media-video__wrapper\"\n                        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<\/div>\n<\/div>\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737d8329\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf737d7eb2\"\n    class=\"rich-text transition--in-up \">\n    <h4 class=\"--h4\">Postupujte rychleji, financujte ve v\u011bt\u0161\u00edm m\u011b\u0159\u00edtku, spolupracujte bez kompromis\u016f<\/h4>\n<p>Pro Steva Gleasona je to z\u00e1sada.<\/p>\n<p>B\u00fdval\u00fd obr\u00e1nce t\u00fdmu New Orleans Saints uk\u00e1zal, \u010deho v\u0161eho jsou lid\u00e9 s\u00a0ALS schopni dos\u00e1hnout. Pot\u00e9, co mu byla v\u00a0roce 2011 stanovena tato diagn\u00f3za, prom\u011bnil Steve svou vlastn\u00ed zku\u0161enost v\u00a0platformu pro konkr\u00e9tn\u00ed kroky \u2013 usiluje o\u00a0lep\u0161\u00ed podporu, pokro\u010dilej\u0161\u00ed technologie a rychlej\u0161\u00ed pokrok ve v\u00fdzkumu.<\/p>\n<blockquote>\n<h6 class=\"--h6\">\u201e\u0158\u00edk\u00e1m, \u017ee mi bylo diagnostikov\u00e1no ALS, aby v\u00a0budoucnu nemuselo b\u00fdt diagnostikov\u00e1no milion\u016fm dal\u0161\u00edch lid\u00ed,\u201c \u0159\u00edk\u00e1 Steve Gleason, zakladatel a\u00a0\u010dlen spr\u00e1vn\u00ed rady projektu Answer ALS.<\/h6>\n<\/blockquote>\n<p>Mnoho fanou\u0161k\u016f NFL si ho pamatuje d\u00edky jednomu legend\u00e1rn\u00edmu okam\u017eiku \u2013 zablokovan\u00e9mu odkopu v\u00a0z\u00e1pase z\u00a0roku 2006. V\u00a0roce 2012 byla p\u0159ed stadionem Superdome odhalena jeho bronzov\u00e1 socha, kter\u00e1 ho zachycuje pr\u00e1v\u011b v\u00a0okam\u017eiku tohoto zablokov\u00e1n\u00ed. Dnes pom\u00e1h\u00e1 p\u0159ekon\u00e1vat p\u0159ek\u00e1\u017eky, kter\u00e9 brzd\u00ed p\u0159\u00edstup a\u00a0pokrok ostatn\u00edch lid\u00ed trp\u00edc\u00edch ALS.<\/p>\n<p>Jako dlouholet\u00fd podporovatel v\u00fdzkumu v\u00a0oblasti ALS Steve trv\u00e1 na tom, \u017ee lid\u00e9 s\u00a0ALS by nem\u011bli \u010dekat na vyl\u00e9\u010den\u00ed, aby mohli i\u00a0nad\u00e1le v\u00e9st smyslupln\u00fd \u017eivot. Prost\u0159ednictv\u00edm neziskov\u00e9 organizace s\u00a0n\u00e1zvem <a href=\"https:\/\/teamgleason.org\/\" target=\"_blank\" rel=\"noopener\">Team Gleason<\/a> pomohl tis\u00edc\u016fm lid\u00ed s\u00a0ALS a\u00a0jin\u00fdmi nervosvalov\u00fdmi onemocn\u011bn\u00edmi z\u00edskat p\u0159\u00edstup k\u00a0praktick\u00fdm n\u00e1stroj\u016fm a\u00a0slu\u017eb\u00e1m, kter\u00e9 jim ji\u017e dnes pom\u00e1haj\u00ed zachovat si nez\u00e1vislost \u2013 zejm\u00e9na v\u00a0oblasti komunikace a mobility. Tato neziskov\u00e1 organizace, jej\u00ed\u017e hlavn\u00ed n\u00e1pln\u00ed je zprost\u0159edkov\u00e1vat lidem p\u0159\u00edstup k asisten\u010dn\u00edm technologi\u00edm a pom\u016fck\u00e1m, zvy\u0161uje pov\u011bdom\u00ed o\u00a0ALS a\u00a0urychluje pokrok sm\u011b\u0159uj\u00edc\u00ed k\u00a0jej\u00edmu vyl\u00e9\u010den\u00ed.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737d8706\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_290932cbabb1713a7446d3a9d6ad9c52\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__st\u0159ed pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\">Technologie mi vrac\u00ed to, co mi ALS ukradlo. M\u016fj hlas, pohyblivost a\u00a0schopnost navazovat kontakty a\u00a0tvo\u0159it.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Zakladatel a\u00a0\u010dlen spr\u00e1vn\u00ed rady projektu Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737d9f05\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf737da7f6\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf737da2ca\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8bf737da1e3\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737da698\" class=\"column\">\n    \n\n<div\n    id=\"block_6a8bf737da4bc\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Vytvo\u0159eno pro v\u00fdzkumn\u00edky a\u00a0navr\u017eeno pro rychlost<\/h3>\n<p>Projekt Answer ALS p\u0159evedl nal\u00e9havost, s\u00a0jakou se Steve Gleason anga\u017eoval, do podoby port\u00e1lu Neuromine \u2013 sd\u00edlen\u00e9ho v\u00fdzkumn\u00e9ho centra, jeho\u017e c\u00edlem je usnadnit vyhled\u00e1v\u00e1n\u00ed, filtrov\u00e1n\u00ed a\u00a0vyu\u017e\u00edv\u00e1n\u00ed dat z\u00a0v\u00fdzkumu ALS. V\u00fdzkumn\u00edk\u016fm tak poskytuje lep\u0161\u00ed p\u0159\u00edstup k\u00a0informac\u00edm, ani\u017e by museli nejprve p\u0159ekon\u00e1vat p\u0159ek\u00e1\u017eky spojen\u00e9 s infrastrukturou, ne\u017e se budou moci v\u011bnovat samotn\u00e9mu boji s\u00a0t\u00edmto onemocn\u011bn\u00edm.<\/p>\n<p>Port\u00e1l Neuromine, jej\u00ed\u017e z\u00e1kladem je ochrana soukrom\u00ed, bezpe\u010dnost a\u00a0\u00facta k\u00a0lidem, jejich\u017e data jsou z\u00e1kladem t\u00e9to pr\u00e1ce, funguje na platform\u011b Azure. D\u00edky tomuto z\u00e1kladu mohou v\u00fdzkumn\u00edci pomoc\u00ed vyhled\u00e1v\u00e1n\u00ed a filtrov\u00e1n\u00ed naj\u00edt relevantn\u00ed \u010d\u00e1sti souboru dat, vyt\u00e1hnout c\u00edlen\u00e9 skupiny pacient\u016f a p\u0159en\u00e9st data do sv\u00e9ho vlastn\u00edho pracovn\u00edho prost\u0159ed\u00ed. Jasn\u00e1 vazba na biologick\u00e9 vzorky a\u00a0zdroje bun\u011b\u010dn\u00fdch lini\u00ed pom\u00e1h\u00e1 t\u00fdm\u016fm p\u0159ej\u00edt od objevu k ov\u011b\u0159en\u00ed, m\u00edsto aby uv\u00edzly na \u00farovni \u201ezaj\u00edmav\u00fd v\u00fdsledek, nejasn\u00fd dal\u0161\u00ed krok\u201c. Spr\u00e1va a\u00a0p\u0159\u00edstup jsou strukturov\u00e1ny tak, aby port\u00e1l z\u016fstal \u0161iroce pou\u017eiteln\u00fd \u2013 ani\u017e by to zpomalovalo opr\u00e1vn\u011bn\u00fd v\u00fdzkum.<\/p>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737daa6b\"\n    class=\"spacer spacer-9 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf737f10ce\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf737db2ca\" class=\"column column-vertical-align--nahoru\">\n    \n\n\n<div\n    id=\"block_6a8bf737dad47\"\n    class=\"spacer spacer-11 spacer-mobile-0 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737daf1d\"\n    class=\"rich-text transition--in-up \">\n    <p class=\"--h4\">Ze 72 t\u00fddn\u016f na dva<\/p>\n<p class=\"unformatted\">V minulosti mohlo z\u00edsk\u00e1n\u00ed souboru dat vhodn\u00e9ho k\u00a0anal\u00fdze trvat 12\u00a0a\u017e\u00a018\u00a0m\u011bs\u00edc\u016f. D\u00edky port\u00e1lu Neuromine mohou v\u00fdzkumn\u00edci p\u0159ej\u00edt od formulace hypot\u00e9zy k z\u00edsk\u00e1n\u00ed p\u0159\u00edstupu k dat\u016fm \u2013 a\u00a0k\u00a0odpov\u00eddaj\u00edc\u00edm biologick\u00fdm vzork\u016fm \u2013 zhruba za dva t\u00fddny.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737db126\"\n    class=\"spacer spacer-0 spacer-mobile-6 spacer--mobile-only\">\n<\/div>\n\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737f0fb2\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_4519bb956e6f79d5bca8cf0cbc2a0e11\"\n    class=\"media-block transition--media ticss-f39380ac media-block--small\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-graphs.jpg 1920w, 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4.99992 10.0002 4.99992H6.58608L8.30378 6.71763C8.49904 6.91289 8.49904 7.22947 8.30378 7.42473L7.59667 8.13184C7.40141 8.3271 7.08483 8.3271 6.88956 8.13184L4.06736 5.30964L4.06083 5.30323L3.35373 4.59612C3.15847 4.40086 3.15847 4.08427 3.35373 3.88901L6.88926 0.353478Z\" fill=\"currentColor\"\/><\/svg>    <\/span>\n    <span class=\"sr-text js-button-label\">\n        pause    <\/span>\n<\/button>\n    <\/div>    \n<div class=\"media-caption\">\n            <div class=\"media-caption__caption\">\u017div\u00e9 neurony u\u00a0pacient\u016f s\u00a0ALS<\/div>\n        <\/div>\n<\/div>\n<\/div>\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737f1344\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf737f1fba\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf737f1734\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8bf737f1640\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf737f1eca\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf737f1902\"\n    class=\"rich-text transition--in-up \">\n    <p>Neuromine umo\u017enil realizaci v\u00edce ne\u017e 520\u00a0v\u00fdzkumn\u00fdch projekt\u016f \u2013 od st\u0159edo\u0161kolsk\u00fdch t\u0159\u00edd a\u017e po p\u0159edn\u00ed v\u00fdzkumn\u00e9 instituce. Data od v\u00edce ne\u017e 1\u00a0100\u00a0\u00fa\u010dastn\u00edk\u016f projektu Answer ALS jsou nyn\u00ed sjednocena a\u00a0dostupn\u00e1 na port\u00e1lu Neuromine spole\u010dn\u011b s\u00a0datab\u00e1z\u00ed ALS Research Collaborative (ARC) institutu ALS Therapy Development Institute, co\u017e v\u00fdzkumn\u00edk\u016fm umo\u017e\u0148uje prozkoum\u00e1vat profily v\u00edce ne\u017e 2\u00a0500\u00a0pacient\u016f s\u00a0ALS na jednom m\u00edst\u011b. Projekt Answer\u00a0ALS odhaduje, \u017ee tento model by mohl v\u00a0p\u0159\u00ed\u0161t\u00edch n\u011bkolika letech zrychlit v\u00fdzkum a\u017e o\u00a065\u00a0%. Poprv\u00e9 mohou v\u00fdzkumn\u00edci analyzovat ALS v\u00a0takov\u00e9m m\u011b\u0159\u00edtku a\u00a0hloubce, kter\u00e9 odhal\u00ed vzorce, kter\u00e9 by \u017e\u00e1dn\u00fd \u010dlov\u011bk s\u00e1m nedok\u00e1zal odhalit.<\/p>\n<p>P\u0159\u00edstupy strojov\u00e9ho u\u010den\u00ed odhaluj\u00ed dosud skryt\u00e9 genetick\u00e9 souvislosti \u2013 v\u010detn\u011b slibn\u00e9 skupiny gen\u016f zvan\u00fdch nukleoporiny, kter\u00e9 reguluj\u00ed transport l\u00e1tek do bun\u011b\u010dn\u00e9ho j\u00e1dra a\u00a0z\u00a0n\u011bj. Prvn\u00ed v\u00fdsledky nazna\u010duj\u00ed, \u017ee kombinace mutac\u00ed v\u00a0t\u011bchto genech by mohly pomoci vysv\u011btlit, pro\u010d u n\u011bkter\u00fdch lid\u00ed doch\u00e1z\u00ed k\u00a0rychl\u00e9mu zhor\u0161en\u00ed stavu, zat\u00edmco jin\u00ed \u017eij\u00ed je\u0161t\u011b mnoho let. Nyn\u00ed mohou v\u00fdzkumn\u00e9 t\u00fdmy tyto poznatky ov\u011b\u0159it tak, \u017ee z\u00a0krevn\u00edch bun\u011bk pacient\u016f vytvo\u0159\u00ed neurony a\u00a0pomoc\u00ed robotick\u00fdch mikroskop\u016f a\u00a0biosenzor\u016f pak v\u00a0re\u00e1ln\u00e9m \u010dase sleduj\u00ed pr\u016fb\u011bh ALS uvnit\u0159 bu\u0148ky.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737f1b77\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf737f1d5e\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n<div id=\"block_6a8bf7381f62b\" class=\"row row--space-between column__container mobile-column-gap-6 column--layout-33-33-33\">\n    \n<div id=\"block-column_6a8bf738090d0\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_ad97d4d1ee613d28cc88bd42f8f1d640\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg 881w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-480x479.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01-768x767.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-01.jpg\"\n                                    width=\"881\"\n            height=\"880\"\n                        class=\"ratio--1-1\"\n            alt=\"\u017dena st\u0159edn\u00edho v\u011bku s\u00a0blond vlasy a\u00a0br\u00fdlemi s\u00a0\u010dern\u00fdmi obrou\u010dkami, oble\u010den\u00e1 v\u00a0b\u00e9\u017eov\u00e9 bund\u011b, se zamy\u0161len\u011b d\u00edv\u00e1 do strany.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8bf73808adb\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_140bb57528d453ebd1a02be13d38cf10\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__lev\u00fd pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">V\u0161ichni \u00fa\u010dastn\u00edci si byli v\u011bdomi toho, \u017ee se v\u00fdsledk\u016f mo\u017en\u00e1 nedo\u017eij\u00ed. Jejich odhodl\u00e1n\u00ed bylo prost\u011b mimo\u0159\u00e1dn\u00e9.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Clare Durrett<\/div>\n                                                    <div class=\"attribution-description\">v\u00fdkonn\u00e1 \u0159editelka projektu Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf738142f2\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_0dc549fb41034ce87749e9faf0262b61\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg 1192w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-480x480.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-768x767.jpg 768w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02-1024x1023.jpg 1024w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-quote-02.jpg\"\n                                    width=\"1192\"\n            height=\"1191\"\n                        class=\"ratio--1-1\"\n            alt=\"\u017dena st\u0159edn\u00edho v\u011bku s\u00a0blond vlasy a\u00a0br\u00fdlemi, oble\u010den\u00e1 v\u00a0\u010dern\u00e9m tri\u010dku, v\u00a0modern\u00ed kancel\u00e1\u0159i s\u00a0po\u010d\u00edta\u010di a zar\u00e1movan\u00fdmi obrazy.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8bf73813ce7\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_db71b65e184d6e8926e36d69f8f9a9cb\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__lev\u00fd pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Vzhledem k tomu, \u017ee Neuromine dok\u00e1\u017ee poskytovat data rychle a\u00a0bez omezen\u00ed po cel\u00e9m sv\u011bt\u011b, zkr\u00e1t\u00ed to dobu pot\u0159ebnou k\u00a0objev\u016fm o\u00a0m\u011bs\u00edce, ne-li o\u00a0roky.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Terri Thompson, PhD<\/div>\n                                                    <div class=\"attribution-description\">\u0159editelka pro spr\u00e1vu dat a\u00a0programov\u00e1 mana\u017eerka projektu Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf7381f4f9\" class=\"column\">\n    \n\n<div\n    id=\"block_f70b286647879d2429533060da7234ab\"\n    class=\"media-block transition--media\">\n    \n<div class=\"unlocked-media media-image js-media-image\">\n                        <picture class=\"\">\n                        <source\n            srcset=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg 772w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-80x80.jpg 80w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-256x256.jpg 256w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-480x481.jpg 480w, https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01-768x769.jpg 768w\"\n                        sizes=\"(max-width: 767px) 92vw, 85vw\" \/>\n                        <img\n            src=\"https:\/\/unlocked.microsoft.com\/wp-content\/uploads\/2026\/03\/als-julia-01.jpg\"\n                                    width=\"772\"\n            height=\"773\"\n                        class=\"ratio--1-1\"\n            alt=\"\u017dena s vlnit\u00fdmi hn\u011bd\u00fdmi vlasy, oble\u010den\u00e1 v\u00a0bl\u016fzce s\u00a0b\u00edl\u00fdm vzorem, stoj\u00edc\u00ed ve v\u011bdeck\u00e9 laborato\u0159i, za n\u00ed\u017e jsou na polic\u00edch um\u00edst\u011bny p\u0159\u00edstroje.\"\n            loading=\"lazy\"\n            decoding=\"async\" \/>\n            <\/picture>\n            <\/div>\n<\/div>\n\n\n\n<div\n    id=\"block_6a8bf7381eed4\"\n    class=\"spacer spacer-2 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_3f5a918b3235a6c8cc1e09b1d53e27a0\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__lev\u00fd pullquote__h5\">\n        <blockquote class=\"quote quote__h5 quote--show-marks\">Jsem opravdu nad\u0161en\u00e1 z\u00a0n\u011bkter\u00fdch ned\u00e1vn\u00fdch v\u00fdsledk\u016f, d\u00edky nim\u017e se n\u00e1m poda\u0159ilo rozli\u0161it bu\u0148ky poch\u00e1zej\u00edc\u00ed od pacient\u016f s\u00a0ALS na z\u00e1klad\u011b dat z\u00a0projektu Answer ALS.<\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Julia Kaye, PhD<\/div>\n                                                    <div class=\"attribution-description\">v\u00fdzkumn\u00e1 pracovnice, Gladstone Institutes<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf7381f8ac\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_6a8bf73821423\" class=\"row row--space-between column__container mobile-column-gap-4 column--layout-40-60\">\n    \n<div id=\"block-column_6a8bf7381fcdd\" class=\"column column--empty\">\n    \n\n<div\n    id=\"block_6a8bf7381fbdc\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n<\/div>\n\n\n<div id=\"block-column_6a8bf738212ae\" class=\"column column-vertical-align--nahoru\">\n    \n\n<div\n    id=\"block_6a8bf7381fea3\"\n    class=\"rich-text transition--in-up \">\n    <\/div>\n\n\n\n<div\n    id=\"block_6a8bf7382007d\"\n    class=\"rich-text transition--in-up \">\n    <h3 class=\"--h4\">Otev\u0159en\u00e1 data, skute\u010dn\u00fd pokrok<\/h3>\n<p>Objevuje se nov\u00fd model v\u00fdzkumu vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. Model, kter\u00fd podporuje otev\u0159en\u00e1 data, pokro\u010dil\u00e9 v\u00fdpo\u010detn\u00ed technologie a\u00a0inovace vych\u00e1zej\u00edc\u00ed z\u00a0komunity, kter\u00e9 spole\u010dn\u011b zkracuj\u00ed cestu od hypot\u00e9zy k\u00a0pozn\u00e1n\u00ed. Pro lidi trp\u00edc\u00ed ALS \u2013 kte\u0159\u00ed \u010dasto nemaj\u00ed \u010das \u010dekat \u2013 p\u0159edstavuje toto zrychlen\u00ed \u0161anci na nalezen\u00ed jasn\u011bj\u0161\u00ed cesty k\u00a0vyl\u00e9\u010den\u00ed.<\/p>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf738202b7\"\n    class=\"spacer spacer-4 spacer-mobile-2 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n<nav\n\tclass=\"story-tags ticss-db52dfad\"\n\taria-labelledby=\"block_8c40ab1bbb61557c61db54157ea03c66-topics-label\"\n\tid=\"block_8c40ab1bbb61557c61db54157ea03c66\">\n\t<div class=\"story-tags__inner\">\n\t\t<span class=\"story-tags__label\" id=\"block_8c40ab1bbb61557c61db54157ea03c66-topics-label\">Topics:<\/span>\n\t\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/cs\/tag\/ai\/\">AI<\/a>\n\t\t\t\t\t\t\t\t<span class=\"story-tags__pair\">\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/cs\/tag\/data\/\">Data<\/a>\n\t\t\t\t\t<a class=\"story-tags__link\" href=\"https:\/\/unlocked.microsoft.com\/cs\/tag\/zdravotnictvi\/\">Zdravotnictv\u00ed<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n<\/nav>\n\n\n<\/div>\n\n\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf738216e9\"\n    class=\"spacer spacer-6 spacer-mobile-4 spacer--v\u0161e-only\">\n<\/div>\n\n\n\n\n<div id=\"block_e6d9f460f4f0ecea8e558600428b59f7\" class=\"transition--in-up \">\n    <div class=\"pullquote pullquote__st\u0159ed pullquote__h4\">\n        <blockquote class=\"quote quote__h4 quote--show-marks\"><span data-teams=\"true\">Jednotliv\u00e9 p\u0159\u00edb\u011bhy se prom\u011b\u0148uj\u00ed v\u00a0kolektivn\u00ed s\u00edlu. Otev\u0159en\u00e1 data urychluj\u00ed v\u0161e.<\/span><\/blockquote>\n                    <div class=\"quote__attribution\">\n                                    <div class=\"attribution-name\">Steve Gleason<\/div>\n                                                    <div class=\"attribution-description\">Zakladatel a\u00a0\u010dlen spr\u00e1vn\u00ed rady projektu Answer ALS<\/div>\n                            <\/div>\n                    <\/div>\n<\/div>\n\n\n\n\n<div\n    id=\"block_6a8bf73821e14\"\n    class=\"spacer spacer-9 spacer-mobile-6 spacer--v\u0161e-only\">\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Lid\u00e9 s\u00a0onemocn\u011bn\u00edm ALS se rozhoduj\u00ed sd\u00edlet sv\u00e1 data prost\u0159ednictv\u00edm port\u00e1lu Neuromine, aby mohli v\u00fdzkumn\u00edci postupovat rychleji a\u00a0spole\u010dn\u011b.<\/p>\n","protected":false},"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":true},"tags":[376,251,408],"class_list":["post-42034","stories","type-stories","status-publish","hentry","tag-ai","tag-data","tag-zdravotnictvi","collections-thriving-communities","entry","page-content"],"acf":{"featured_media_featured_scrim_color":"#000000","featured_media_card_ratio":"1-1","featured_media_card_image":30513,"featured_media_card_video":"","featured_media_card_video_button_desc":"","featured_media_featured_image":30540,"featured_media_featured_video":"","featured_media_featured_video_button_desc":"","featured_media_featured_headline":"","featured_media_featured_excerpt":"","featured_media_search_image":29470,"featured_media_search_card_image":30567,"featured_media_search_card_video":"","featured_media_search_card_video_button_desc":"","disable_segoe_serif":false,"settings":{"external_url":[""],"collections":6}},"_links":{"self":[{"href":"https:\/\/unlocked.microsoft.com\/cs\/wp-json\/wp\/v2\/stories\/42034","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/unlocked.microsoft.com\/cs\/wp-json\/wp\/v2\/stories"}],"about":[{"href":"https:\/\/unlocked.microsoft.com\/cs\/wp-json\/wp\/v2\/types\/stories"}],"wp:attachment":[{"href":"https:\/\/unlocked.microsoft.com\/cs\/wp-json\/wp\/v2\/media?parent=42034"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/unlocked.microsoft.com\/cs\/wp-json\/wp\/v2\/tags?post=42034"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}